October 8, 2015

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia

New Registry research on gastroesophageal reflux disease in patients with IPF will be presented at the Australian Rare Lung Diseases Short Course in Sydney on 16 – 17 October. Gastroesophageal reflux has been observed in many people with IPF and may be an important factor in this disease. This research is timely as a recent update of international guidelines for the treatment of IPF recommends the treatment of reflux.

With more than 600 patients with IPF now generously providing their information to the Australian IPF Registry, important research using the data collected is being undertaken. If you have Idiopathic Pulmonary Fibrosis you too can help. Please ask your respiratory physician about the Registry during your next visit. Health professionals, please contact the Registry Coordinator in your State to inform them of your IPF patients who are interested in joining the Registry. To find the Coordinator in your State please call Sacha Macansh on 02 9515 3996 or email ipf@lungfoundation.com.au or visit the Lung Foundation website www.lungfoundation.com.au/health-professionals/idiopathic-pulmonary-fibrosis-registry.

Clinical trials for IPF medications in Australia

Apart from creating a unique research platform, the Australian IPF Registry also aims to improve recruitment to clinical trials for new potential medications. A number of clinical trials in IPF are currently being or have recently been undertaken in Australia.

IPF Trails Nov LungNet

For further information on these trials, please speak to your respiratory physician.