February 23, 2015

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia

More than 575 participants are now contributing to the Australian IPF Registry and more than 120
of these participants have provided a blood sample. As the Registry increases in size its value to researchers also increases. By participating in the Registry you are helping researchers understand more about this complex disease.

For the analysis of the first 500 Registry participants across Australia 337 (83.2%) have already completed their first questionnaire. On average these participants are 71.3 years old and 237 (67.4%) of them were men. Their physicians had also completed surveys for 287 of these participants and identified the recent investigations that have been undertaken.

If you have Idiopathic Pulmonary Fibrosis you too can help, please ask your respiratory physician about the Registry during your next visit.

Health care providers please contact the Registry Coordinator in your State to inform them of your IPF patients who are interested in joining the Registry. To find the Coordinator in your State please see the table below. For further information contact Sacha Macansh on 02 9515 3996 or email ipf@lungfoundation.com.au or visit the Lung Foundation website www.lungfoundation.com.au/health-professionals/idiopathic-pulmonary-fibrosis-registry/

Australian IPF Registry Coordinators

Australian IPF Registry Coordinators

Clinical Trials for IPF Medications in Australia

Apart from creating a unique research platform the Australian IPF Registry also aims to improve recruitment to clinical drug trials. A number of clinical trials are currently being or have recently been undertaken in Australia.

Clinical Trials for IPF Medications in Australia