Registries

Lung Foundation Australia has established two registries that are collecting patient data on Idiopathic Pulmonary Fibrosis (IPF) and Bronchiectasis within Australia. Registries provides many benefits that include:

  • A unique platform for epidemiological and clinical research
  • Improved recruitment into clinical trials
  • Increased disease awareness and improved tertiary referral
  • Improved patient understanding and support networks
  • Improved Australian and international research collaboration

Australian Bronchiectasis Registry

The Australian Bronchiectasis Registry is a non-commercial research project that has been initiated by a group of Australian Respiratory Specialist doctors together with Lung Foundation Australia. Recruitment opened in January 2016 at Concord Hospital, NSW and a staggered roll-out of others sites across other States and Territory. Currently there are 20 sites participating in entering data with nearly 700 patients have been entered.

Click here for more information for health professionals.

Click here for more information for Patients and family members.

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Our IPF Registry provides a unique research platform that collects information on patients throughout the country. Researchers use this information to help us better understand this serious and complex disease. This unique and rich dataset is already being used in both national and international studies.

Click here for more information for health professionals.

Click here for more information for Patients and family members.