The European Bronchiectasis Registry protocol published in ERJ Open Research
The Australian Bronchiectasis Registry (ABR) was acknowledged in a recent paper, The EMBARC European Bronchiectasis Registry: protocol for an international observational study, published in ERJ Open Research, a new online and open access research journal, by the European Respiratory Society.
The principal investigator group for the Australian Bronchiectasis Consortium (ABC) chaired by A/Prof Lucy Morgan operating under the guidance of Lung Foundation Australia co-authored the publication.
The paper presents the key objectives, methods and design of the pan-European registry. It also describes the important role international collaborations with the US and Australasian registries have in developing future studies and contributing to the largest and most detailed analysis of the natural history and impact of bronchiectasis to date.
Participant recruitment to the ABR is imminent at the lead site Concord Hospital in Sydney and the staggered roll-out will see 10 pilot sites centres Australia-wide come online by mid-2016.
We encourage all health professionals to register for updates on the ABR by emailing firstname.lastname@example.org.