Advocacy

Lung Foundation Australia plays an important role in advocating for greater effort and resources into promoting lung health and advocating for those affected by lung disease.

The community is well aware of the messages to protect their heart health, their skin health and their breast health.  Greater effort must go into communicating the important message about protecting lung health.

The Lung Foundation also advocates for better access to evidence-based programs for those with lung disease.

Parliamentary Friends of lung health

In 2017, Lung Foundation Australia held two Parliamentary Friends of Lung Health events to bring key opinion leaders, including politicians and members of parliament, together with patient advocates and clinicians.

Turning the spotlight on rare lung disease

This Parliamentary Friends event aimed to raise awareness about the impact of rare lung diseases, particularly in children, and the steps required to build a framework that will allow equitable access to care, treatment and support.

Understanding is rare, lung disease is not

Results from the national consumer survey on stigma were released at a Parliamentary Friends of Lung Health event on 26 October. This event officially launched Lung Health Awareness Month and focused on raising awareness amongst our nation’s politicians and key opinion leaders about lung disease and the prevalence of stigma in our society

Occupational lung disease

Lung Foundation Australia, together with the Thoracic Society of Australia and New Zealand, advocated for a centralised national occupational lung disease register through a submission to the Senate enquiry on Coal Workers Pneumoconiosis (black lung).

Funding for research into cancers with low survival rates

Lung Foundation Australia, together with key clinicians and patient advocates, participated in the Senate Select Committee enquiry into Low Survival Rate Cancers. Together we made recommendations to improve access to funding, research, education, medication and support for people with low survival cancers.

Department of Health round table discussion

Lung Foundation Australia and the Department of Health hosted a Lung Health Round Table discussion which bought together representatives across different lung diseases to identify practical clinical interventions to improve patient outcomes. A suite of recommendations were developed and will be sent for consideration to the Australian Health Ministers Advisory Council.

Enquiry into the Use and Marketing of Electronic Cigarettes

In a submission to the Senate Enquiry on the Use and Marketing of E-cigarettes and Personal Vaporisers, Lung Foundation Australia and Thoracic Society of Australia and New Zealand urged the government to take a precautionary approach to e-cigarettes. The evidence for their use in smoking cessation is not at all clear which is why we are suggesting that, like all other cessation products, they be regulated by the Therapeutic Goods Administration (TGA) and that ongoing trials be conducted to continue to review their safety and efficacy.

Download the full submission: TSANZ-LFA-e-cigarette government submission

Federal Budget Submission

Lung Foundation Australia’s Federal Budget Submission for 2018-19 urged the government to ensure lung disease receives the funding and support needed to reduce its impact as the nation’s second leading cause of death. The submission outlined six high-priority and cost-effective actions that will transform the lives of those affected by lung disease. To view the full budget submission, click here or download below.

Lung Foundation Australia Budget submission_FINAL (2 MB)

Pharmaceutical Benefits Scheme listings

Lung Foundation Australia continued to play a role in advocating for affordable access to new and proven medications for people living with a lung disease, such as lung cancer, Chronic Obstructive Pulmonary Disease (COPD) and Idiopathic Pulmonary Fibrosis (IPF).

Pulmonary rehabilitation MBS listing

Lung Foundation Australia invited key federal Members of Parliament to visit their local pulmonary rehabilitation class to see first-hand the benefits patients receive from participating in this program. This formed part of our advocacy work supporting our application to the Medical Services Advisory Committee (MSAC) for pulmonary rehabilitation programs to be subsidised on the Medicare Benefits Scheme (MBS), submitted in December 2014. An outcome is expected in late 2018.

Improving outcomes for Australians living with lung cancer – A Call To Action

Every day in Australia, 25 people die from lung cancer while another 34 people are diagnosed with this devastating disease. It is our nation’s leading cause of cancer death, killing more people than breast, prostate and ovarian cancers combined.

 Lung Foundation Australia has identified four areas where some of the most significant obstacles facing a person with lung cancer must be addressed.

Lung Foundation Australia calls on funders, policy makers, clinicians, other stakeholders and the wider community to help us improve outcomes for those who are currently battling lung cancer and for those who will be diagnosed with lung cancer in years to come.

LFA improved outcomes Flyer A4 0816-web (257 KB) Lung Foundation Australia - Improving outcomes for Australians with lung cancer - A call to action (2 MB)

Lung Foundation Australia e-cigarette position statement

Lung Foundation Australia E-Cigarettes Position Statement 18 June 2014 (185 KB)

 

 

 

 

 

 

 

 

 

 

 

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