July 17, 2017

Australian Rare Lung Disease Short Course Patient Education Seminar – Book now

As part of the third Australian Rare Lung Disease Short Course, Lung Foundation Australia is hosting a Patient Education Seminar on Saturday 19 August in Sydney. As part of the third Australian Rare Lung Disease Short Course, Lung Foundation Australia is hosting a Patient Education Seminar on Saturday 19 August in Sydney.

What is a rare lung disease?

Approximately 7,000 rare diseases have been identified worldwide. While rare, collectively they affect 6-10 percent of the Australian population. This equates to approximately 1.2 million people, which is similar to those who suffer from diabetes.1 Among these rare diseases there are many rare lung diseases. The Australasian Registry Network for Orphan Lung Disease was set up to collect data on 30 rare lung diseases, however clinicians estimate there are many more than this, perhaps hundreds.

What does the Patient Education Seminar offer?

The seminar is a four hour program featuring speakers including clinicians, nurses, physiotherapists and psychologists. The seminar is for anyone living with, or caring for someone with a rare lung disease such as Interstitial Lung Disease (ILD), Idiopathic Pulmonary Fibrosis (IPF), pulmonary hypertension or connective tissue disease-related ILD. Each speaker will present different topics, explaining what the disease is, different treatment options and how to stay active and maximise quality of life.

When: Saturday 19 August, 2017, 9.00am to 1.00pm. Session check-in opens at 8.30am.

Where: Rose Bay Room, ParkRoyal Hotel, Darling Harbour, 150 Day Street, Darling Harbour.

Registration: As places are limited, please register by calling 07 3251 3652 or email ameliap@lungfoundation.com.au. The seminar costs $10 per person, payable on the day.

Transport: For public transport, please call NSW Transport on 131 500 or visit www.transportnsw.info. A return shuttle bus service from Central Station is also available. You will need to let event organisers know when you register as spaces will be limited.

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