Help us give hope and inspiration to the individuals and families affected by PAH by sharing the story of how you or someone you love has been affected by the disease and strategies you use to live your best life.
Live your best life with Pulmonary Arterial Hypertension
Living with a rare lung condition like Pulmonary Arterial Hypertension (PAH) can be frightening and isolating. If you or your loved one is living with PAH, you’re not alone – Lung Foundation Australia has a range of trusted tools, resources and support available to help you manage your condition and live your best life. Download our free Live Your Best Life With PAH Pack this Pulmonary Hypertension Awareness Month.
Live Your Best Life With PAH
PAH is a very complex disease that is experienced differently by each person and the information available may be confusing or hard to understand at times. In collaboration with clinical experts, we have developed a free pack of tools and resources to help you understand more about PAH, how to manage your condition and help you to live your best life.
The resource pack includes:
- Self-management for PAH – effective self-management is important to help slow the progression of symptoms if you are living PAH. The pack includes a copy of our comprehensive Living with Pulmonary Arterial Hypertension booklet and access to our expert led Live Well, Breathe Better webinar series.
- Managing emotional and mental wellbeing – the physical impact of PAH can take its toll, but the less obvious impacts are those affecting mental wellbeing. The pack includes a self-care template and techniques to manage anxiety and stress.
- Physical health – despite its proven benefits, almost 90% of people living with a lung condition are unable to exercise as much as they would like. The pack includes handy resources to help get you moving including information about our exercise programs, access to our online exercise series and a downloadable copy of the Better Living with Exercise booklet.
- Peer support – connecting with someone who has the same condition – someone who understand what you’re going through – can make all the difference. The pack includes information about the benefits of peer support and connection to the best program to support your needs.
Enter your details to download the pack below.
How you can help
Every donation helps support life-changing research, programs and services to ensure every Australian impacted by a lung disease, such as PAH, has access to resources and support to live their best life.
Download and share our promotional pack of social media posts, tiles and newsletter content using #PHAwarenessMonth and #LiveYourBestLife to help spread the word and encourage people living with PAH to reach out for information and support. Don’t forget to tag us!
Signs and Symptoms
PAH is caused by narrowing or blockage of the blood vessels (arteries) that carry blood from the heart to the lungs. It causes increased strain on the heart and can eventually result in heart failure. PAH is only one type of Pulmonary Hypertension (increased blood pressure within the blood vessels of the lungs).
The first symptoms of Pulmonary Arterial Hypertension (PAH) can be subtle and you may only notice them when you exercise – climbing stairs, running, walking uphill or carrying bags. As PAH progresses, the symptoms may become more noticeable with normal daily activity and interfere with your daily routine. It’s important to know each person experiences PAH differently.
Common symptoms include:
- Shortness of breath
- Feeling tired or fatigued
- Chest discomfort or pain
- A fast and/or irregular heartbeat
- Light-headedness or fainting
- Swelling in your legs and /or abdomen
- Lips and fingers turning purple or blue.
Take two minutes to complete the lung health checklist today