Pulmonary Arterial Hypertension

We know that people with a rare disease, such as Pulmonary Arterial Hypertension (PAH), face very similar problems including:

  • A delay in diagnosis and treatment due to limited awareness of their condition
  • Difficulty accessing information, the best service and treatment, either because of locality or because one does not exist
  • Difficulty navigating the health system and accessing support, whether this is in the form of equipment, financial or peer support.