Pulmonary Arterial Hypertension

We know that people with a rare disease, such as Pulmonary Arterial Hypertension (PAH), face very similar problems including:

A delay in diagnosis and treatment due to limited awareness of their condition
Difficulty accessing information, the best service and treatment, either because of locality or because one does not exist
Difficulty navigating the health system and accessing support, whether this is in the form of equipment, financial or peer support.

Featured resources

Fact sheet

The Pulmonary Arterial Hypertension (PAH) fact sheet provides a brief overview of PAH, symptoms, causes, diagnosis, treatment, and management.

Living With Pulmonary Arterial Hypertension

Booklet

Living well with Pulmonary Arterial Hypertension booklet provides a detailed overview of the condition and how to best manage it in accordance with the latest evidence.

Managing PAH

Webinar

In this webinar, Dr. John Feenstra (Respiratory Physician) shares tips to live well with Pulmonary Arterial Hypertension (PAH).

Information and Support Centre

Our Information and Support Centre team provides guidance, information and support, and connects people to relevant and valuable Lung Foundation Australia and community support services. This free and confidential service is available Monday to Friday 8am – 4.30pm (AEST) (excl. public holidays). Please note that this service does not offer medical or treatment advice.

Helpful Links

PHuman

Supporting young adults living with (PAH) in the best practice management of their disease.

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