Social and psychological research may ask questions about your experiences to explore ways to improve health or wellbeing. This type of research often looks at experiences through the patient or carer lens and may cover physical health, social habits and/or emotional wellbeing.
Health services research may be used to identify how well health services work for people and preferences for different types and styles of services.
Participate in social research
Become a community representative for lung cancer research
Peter MacCallum Cancer Centre is looking for people impacted by or living with lung cancer to play an important role in advancing the search for cancer cures by partnering with cancer researchers as community representatives. Community representatives don’t need a science background – Peter Mac’s researchers are seeking to learn from your experiences of cancer and cancer treatment. To find out more about becoming a Peter Mac community representative, please email your name, phone number and the cancer types you’re interested in to Peter MacCallum Cancer Centre’s Research Consumer Engagement Coordinator, Anna Jones, at firstname.lastname@example.org.
The use of ambient and individual music listening during pulmonary rehabilitation in Australia
Pulmonary rehabilitation is part of standard care people with chronic lung conditions. While most individuals undertaking a pulmonary rehabilitation program experience improvements in symptoms, exercise tolerance, and quality of life, not all individuals achieve benefit. For some, this is due to symptoms of breathlessness or fatigue accompanied by anxiety, which may reduce adherence to a program. In people without lung disease, listening to music during exercise distracts from symptoms of fatigue and breathlessness and can lead exercising at a higher level and improved mood. Music listening during pulmonary rehabilitation may enhance motivation to exercise and promote adherence by increasing an individual’s enjoyment and pleasure during the activity. Within pulmonary rehabilitation programs in Australia, ambient (background) music may be played during exercise sessions. However, the use of ambient music during these programs, the musical choice and input into selection is not known. Some individuals may also elect to listen to their own music while exercising, but the extent to which this occurs is unclear.
This study aims to establish the current practice in the use of ambient (background) music and individual music listening during exercise training within pulmonary rehabilitation programs in Australia.
Clinicians who are coordinators of, or involved in the delivery of exercise sessions as part of a pulmonary rehabilitation program within Australia.
Recruitment ends: 31/01/2021
To find out more, click here.
Psycho-oncology Co-operative Research Group – COVID-19
The Psycho-Oncology Co-operative Research Group from the University of Sydney are conducting research which explores the experiences of people living with cancer in the context of the current COVDI-19 pandemic. The study will initially involve a short survey and telephone interview. Two follow-up interviews will also be conducted at 6 and 12-months. We expect the survey will take about 10 minutes to complete and the interviews are expected to take between 30 and 40 minutes.
The study may be suitable for you if you:
- Are over 18 years old; and
- Have a proficient level of English; and
- Are a cancer patient currently receiving treatment or have received treatment in the last 6 months; OR
- Are a carer/ family member with a direct experience of caring for a cancer patient in the last 6 months.
To find out more, click here.
Out with Cancer Study
This study aims to understand the experiences and concerns of cancer survivors and carers within lesbian, gay, bisexual, transgender and intersex communities. This vulnerable population reports higher rates of cancer related distress and dissatisfaction with care than the general population. Their unique experiences and needs have been overlooked by cancer researchers, policy makers, and service providers. The goal of this study is to examine the perspectives of cancer survivors, their carers, and professional stakeholders, to inform targeted patient and carer resources, and recommendations for culturally competent cancer care and policy. The outcome will be critical new information to improve the health and wellbeing of sexual and gender minorities. The study will be recruiting participants for 12 months and all throughout 2020.
Inclusion criteria: Group 1: LGBTQI+ people aged 15 years or older and who have/ had cancer or medical intervention(s) to reduce cancer risk.
Group 2: Carers (partners, family members and friends of LGBTQI+ people with cancer, or, LGBTQI+ people who are cancer carers), aged 15 years or older.
Group 3: Healthcare professionals aged 18 years or older working in oncology.
Exclusion Criteria: less than 15 years of age, people with cancer who are not LGBTQI+, carers who do not meet the description above, healthcare professionals who do not work with people who have or have had cancer.
For more information or to participate, click here.
The Lung Cancer Nurse Specialist: Co-designing the role with patients and carers.
The University of Tasmania invite you to participate in a research study to see how lung cancer nurse specialists can improve their role in order to improve the overall experience of having lung cancer.
Phase 2 of this research is now open. Participation is via online survey. Click here to complete.
The study is being conducted as part of a Professional Doctorate by Renae Grundy under the supervision of Professor Ken Walsh and Professor Christine Stirling at the University of Tasmania. For more information or to request a paper-based survey contact email@example.com.
Get involved in research
To learn more about social research and industry policy, visit the websites below.