Social and psychological research may ask questions about your experiences to explore ways to improve health or wellbeing. This type of research often looks at experiences through the patient or carer lens and may cover physical health, social habits and/or emotional wellbeing.
Health services research may be used to identify how well health services work for people and preferences for different types and styles of services.
Participate in social research
Purpose Study (Professional Referral to Physical Activity, Sport and Exercise)
The Institute of Musculoskeletal Health, from the University of Sydney, is interested in talking to people about their experiences in participating in physical activity and exercise. The aim of the research is to find out more about how health professionals can encourage participation in physical activity and exercise. Interviews will be held via telephone or video call and will take 20-30 minutes.
Inclusion criteria: If you are over 50 years of age or live with a physical disability and have seen a physiotherapist in the past two years you are eligible to participate. Interviews will be held via telephone or video call and will take 20-30 minutes.
To find out more visit: www.proposestudy.org.au or call 02 8627 6248.
Recruitment closes 30th Nov, 2020.
Psycho-oncology Co-operative Research Group – COVID-19
The Psycho-Oncology Co-operative Research Group from the University of Sydney are conducting research which explores the experiences of people living with cancer in the context of the current COVDI-19 pandemic. The study will initially involve a short survey and telephone interview. Two follow-up interviews will also be conducted at 6 and 12-months. We expect the survey will take about 10 minutes to complete and the interviews are expected to take between 30 and 40 minutes.
The study may be suitable for you if you:
- Are over 18 years old; and
- Have a proficient level of English; and
- Are a cancer patient currently receiving treatment or have received treatment in the last 6 months; OR
- Are a carer/ family member with a direct experience of caring for a cancer patient in the last 6 months.
To find out more, click here.
Targeted Therapies in Cancer Care
Researchers at The University of Sydney want to hear about your experiences of targeted therapies (sometimes known as precision therapies, immunotherapies and molecular therapies) in cancer care. They are interested in talking with anyone over the age of 18 that has been screened for, has received, or is receiving targeted therapies and/or immunotherapies for lung cancer. Carers are also invited to participate. Participation involves a 30-60 minute interview, through either a video or telephone call. To see how your experiences may change over time, you may also be invited to a follow-up interview in the next 6-12 months. This study aims to inform policy makers, clinicians, patients, their carers and families, and the public about the realities of precision medicine for cancer care in Australia through the unique perspectives of those living with cancer across a range of tumour types and life stages. The research is being conducted a team of social scientists, funded by the Australian Research Council.
For more information and to register your interest in participating, please contact Dr Alex Page via email or telephone 0466 117 792. Recruitment is open until the end of 2020.
Out with Cancer Study
This study aims to understand the experiences and concerns of cancer survivors and carers within lesbian, gay, bisexual, transgender and intersex communities. This vulnerable population reports higher rates of cancer related distress and dissatisfaction with care than the general population. Their unique experiences and needs have been overlooked by cancer researchers, policy makers, and service providers. The goal of this study is to examine the perspectives of cancer survivors, their carers, and professional stakeholders, to inform targeted patient and carer resources, and recommendations for culturally competent cancer care and policy. The outcome will be critical new information to improve the health and wellbeing of sexual and gender minorities. The study will be recruiting participants for 12 months and all throughout 2020.
Inclusion criteria: Group 1: LGBTQI+ people aged 15 years or older and who have/ had cancer or medical intervention(s) to reduce cancer risk.
Group 2: Carers (partners, family members and friends of LGBTQI+ people with cancer, or, LGBTQI+ people who are cancer carers), aged 15 years or older.
Group 3: Healthcare professionals aged 18 years or older working in oncology.
Exclusion Criteria: less than 15 years of age, people with cancer who are not LGBTQI+, carers who do not meet the description above, healthcare professionals who do not work with people who have or have had cancer.
For more information or to participate, click here.
The Lung Cancer Nurse Specialist: Co-designing the role with patients and carers.
The University of Tasmania invite you to participate in a research study to see how lung cancer nurse specialists can improve their role in order to improve the overall experience of having lung cancer. The study is being conducted as part of a Professional Doctorate by Renae Grundy under the supervision of Professor Ken Walsh and Professor Christine Stirling at the University of Tasmania.
For more information click here. Phase 2 recruitment opening soon.
Get involved in research
To learn more about social research and industry policy, visit the websites below.