This fact sheet has been designed to help people living with pulmonary fibrosis to understand more about the immunosuppressant medication, Mycophenolate (Cellcept, Myfortic).
Mycophenolate is used to control the immune system and reduce lung inflammation, potentially preventing fibrosis (scarring).
Before taking mycophenolate, it is important to inform your doctor if you are allergic to mycophenolate, mycophenolic acid, or any other substances. You should also discuss all other medications, supplements, and herbal products you are taking.
Mycophenolate is not recommended for pregnant women, so it is crucial to discuss contraception if you or your partner could become pregnant. Additionally, inform your doctor about any other health issues, especially skin cancer, low white blood cell count, stomach or bowel problems, and liver or kidney disease.
When starting Mycophenolate, your doctor will provide specific instructions on dosage and timing. The medication is typically taken twice a day, 12 hours apart, and the dose may be increased over time.
Regular blood tests are required to monitor for side effects and adjust the dosage if necessary. Patients should also have regular check-ups with their healthcare provider to monitor lung function and overall health.
Common side effects include diarrhoea, stomach pain, nausea, vomiting, muscle or joint pain, skin rashes, and difficulty sleeping. Serious side effects, such as difficulty breathing, chest pain, unusual bruising or bleeding, skin lesions, pale skin, black or tarry stools, and symptoms of infection, should be reported to your doctor immediately.
For detailed guidance on side effects and safety precautions, consult the Consumer Medicine Information leaflet and consult your healthcare provider. If you or someone you know is affected by pulmonary fibrosis, reaching out to the Lung Foundation Australia can provide valuable support and information. They are dedicated to helping patients navigate their journey and access the best possible care. For more information and support, individuals can contact the Lung Foundation Australia’s Information and Support Centre at 1800 654 301 or visit their website.
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