This webinar provides information on the current medications available for people living with Idiopathic Pulmonary Fibrosis (IPF) and includes an overview of the benefits and side effects.
Idiopathic Pulmonary Fibrosis (IPF) is a lung disease of unknown cause characterised by scarring (fibrosis) of the lung tissue. Diagnosis often involves symptoms like breathlessness or a persistent cough, confirmed through CT scans, lung biopsies, and blood tests.
Treatment options for IPF include two main medications available in Australia: nintedanib (Ofev) and pirfenidone (Esbriet). These drugs do not cure IPF but can slow its progression. For example, if a patient typically loses 10% of lung capacity per year, these medications can reduce the loss to about 5% per year. Both medications are funded by the federal government, minimising out-of-pocket expenses.
Common side effects of nintedanib include diarrhoea, nausea, vomiting, and liver function changes. Pirfenidone can cause nausea, vomiting, skin rash, and liver function changes. Managing these side effects involves taking medications with food, adjusting diet, and using anti-diarrhoea or anti-nausea medications. Regular blood tests are necessary to monitor liver function.
Pulmonary rehabilitation is highly beneficial for IPF patients, helping to improve symptoms and exercise capacity. In advanced cases, lung transplantation may be considered.
Patients shared their experiences with IPF, emphasising the importance of planning and managing side effects. The value of clinical trials, peer support, and staying informed through reliable sources like the Lung Foundation Australia are highlighted.
For managing breathlessness, pulmonary rehabilitation programs offer strategies and techniques. Oxygen therapy is used selectively, as lower oxygen levels do not always correlate with breathlessness.
Patients are encouraged to seek specialist input, consider clinical trials, and utilise resources like the Lung Foundation and peer support programs. Staying informed and connected with others who understand the condition can significantly improve quality of life.
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