The Emotional Impact of Idiopathic Pulmonary Fibrosis webinar is presented by Debra Sandford, Clinical Psychologist from The University of Adelaide and The Royal Adelaide Hospital. The webinar features information on the emotional impact of IPF and the importance of taking care of your emotional well-being.
Psychology aims to understand how people think, feel, behave, and learn, and to use this knowledge to help improve quality of life. This presentation covers the emotional impact of idiopathic pulmonary fibrosis (IPF) on patients and their loved ones, strategies for managing difficult emotions, and the importance of palliative care and lung transplants.
At diagnosis, patients often experience a range of emotions, including fear, anger, and sadness. These reactions are normal and part of the grief process. Grief helps individuals adjust to bad news and can include both loss-oriented and restoration-oriented aspects.
Emotions are influenced by thoughts, which are shaped by individual experiences and schemas. Negative emotions can impact physical health, making it important to address psychological distress. Psychological distress can vary in severity and may be linked to exacerbations or other life events.
Living with uncertainty involves adjusting to a new normal and maintaining engagement with life. Strategies include pacing activities, using accurate descriptive language, and being kind to oneself. It’s important to avoid letting IPF define one’s identity and to focus on living according to personal values.
Talking to loved ones about IPF can be challenging, but it’s crucial to share feelings and concerns. Putting on a brave face can lead to isolation, so open communication is key. Family therapy can help facilitate difficult conversations.
Palliative care should be introduced early to manage symptoms and enhance quality of life. It involves a multidisciplinary team and can include creating an advanced care plan to discuss end-of-life preferences.
Lung transplants offer a second chance but come with their own challenges. It’s important to have realistic expectations and to discuss eligibility and the process with a respiratory physician.
Overall, addressing the emotional and psychological aspects of IPF is essential for improving quality of life for patients and their loved ones. Seeking support from psychologists and other healthcare professionals can provide valuable assistance.
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