Five tips to manage pulmonary fibrosis  

Finding up-to-date and relevant information to help you manage pulmonary fibrosis can be difficult.  

In this blog, we will explore five key areas to manage pulmonary fibrosis and what you can do to maintain a good quality of life and stay as healthy as possible. 

Getting an early and accurate diagnosis 

Many people do not receive a diagnosis until they have been living pulmonary fibrosis for some time. Early in the disease, symptoms can be subtle such as a cough or mild fatigue. Most people who are diagnosed are generally older and it can be easy to put the symptoms down to ageing, being unfit or mistaking them for other medical conditions. This means a diagnosis can take some time, as other conditions are ruled out first, before considering pulmonary fibrosis.  

Receiving an early diagnosis can help to slow the progression of the disease and improve life for those affected. 

Connect with others living with pulmonary fibrosis 

Being diagnosed with a rare condition like pulmonary fibrosis can feel isolating, but it is important for you or your loved one to know there is support available. Lung Foundation Australia offers a range of complimentary peer support groups for people diagnosed and for carers, to connect you with others who understand what you’re going through and share tips to manage pulmonary fibrosis.  

Visit our Service Directory to find an option that suits you today.  

Look after your mental health 

Taking care of your mental wellbeing is an essential element of helping you manage pulmonary fibrosis. As life changes, and a new routine of doctors and treatment fills life, you may experience a range of feelings. Considering your mental health and what steps you can take to look after yourself can help improve your overall wellbeing. We offer a range of online resources to help you navigate the unique challenges of living with pulmonary fibrosis. Visit our Mind Matters Hub to learn more.

How exercise can help you manage pulmonary fibrosis 

At times living with pulmonary fibrosis means your physical wellbeing can take a backseat. Exercise can feel overwhelming and sometimes even scary. Regular movement can help improve symptoms such as breathlessness, increase your overall strength and make day-to-day activities easier. Participating in a tailored program like pulmonary rehabilitation can help you gain the confidence and knowledge to exercise safely and effectively.  

Pulmonary rehabilitation involves endurance, flexibility and strength training. Breathing exercises such as belly breathing and pursed lip breathing can help your lungs to become more efficient. These exercises can help to rid the lungs of amassed stale air, increase oxygen and help the diaphragm to return to its job of helping you to breathe. Ask your healthcare team about a referral to a pulmonary rehabilitation program to help manage pulmonary fibrosis. Explore our services to find a location near you. 

The role of diet in managing pulmonary fibrosis 

Pulmonary fibrosis can make it a challenging to stick to a diet rich in fruits and vegetables and maintain a healthy weight. You may find with some medications used to manage pulmonary fibrosis, your appetite is greater or smaller than usual. It’s important to be mindful of eating regular meals and getting enough fluid. Speak to your GP or specialists who can offer guidelines or refer you to see a dietician to discuss your dietary needs.  

Download your free resource pack today 

Lung Foundation Australia, in partnership with the Centre of Research Excellence in Pulmonary Fibrosis, developed a free resource pack which includes evidence-based resources, connection to a community of others who understand, and updates on clinical trials and research. Download your free pack today.