Living with a rare lung disease like Pulmonary Arterial Hypertension (PAH) can be challenging, and finding others who understand what you are going through can be difficult. Lung Foundation Australia is hosting a range of Lived Experience panels to give our community the opportunity to meet and hear from other people who are living with the same condition.
In honour of World Pulmonary Hypertension Day, we look forward to presenting the PAH Lived Experience Panel to share the lived experiences of people living with PAH, and their carers. Our panelists are strong advocates for building awareness, resources, and connections to support those living with PAH. The panel will share their experiences of living with the condition, including the challenges they encounter, coping strategies and their stories of strength and hope. Both pre-submitted and live questions from participants joining the webinar will be answered by the panel.
Date: Thursday 5 May 2022
Time: 12:00pm (QLD, NSW, VIC, TAS), 11:30am (NT, SA), 10:00am (WA)
Meet our Panelists:
“Cate was diagnosed with Pulmonary Hypertension 29 years ago when her daughter was just two and she was in her early 20’s. Cate is now in her early 50’s, a Grandmother and is still “phighting”.”
Lucy was diagnosed with Primary Pulmonary Hypertension in 1988, when “dinosaurs still roamed the earth”, and has been on IV medication for about ten years. She insists that you can ask her any question, no matter how personal.
PAH has been a part of Tegan’s life which she was five. Now in her 30s, Tegan is a nurse who shares her experience to help encourage the future generation and offer hope.
For more than 14 years, mother-of-two Kylie has been receiving intravenous medication to treat PAH. She hopes sharing her story will help others to feel less alone.