Consumer Advisory Committees

The committees assist the organisation and Board by providing strategic advice on matters related to lung health, through representing the interests of their lung disease or lung cancer and providing insight into the lived experience.

What are the Consumer Advisory Committees?

The committees may be asked to provide advice on a variety of issues and topics across the areas of information, support, research, advocacy and community awareness. Responsibilities include:

  • To provide Lung Foundation Australia advice on lived experience with lung disease and lung cancer including the pressure points and impacts across the consumer journey.
  • To advise and provide feedback on information, resources, campaigns and marketing activities used by Lung Foundation Australia to raise awareness of the prevalence, burden and consequences of lung disease and lung cancer.
  • To review and be involved in the design, planning, implementation and maintenance of services and information resources.
  • To identify and prioritise areas requiring advocacy and fundraising.
  • To develop annual work plans to guide activity.

To represent the many disease areas we cover, Lung Foundation Australia has five consumer committees:

  • Chronic Lung Disease Consumer Advisory Committee – representing COPD and Chronic Lung Conditions
  • Lung Cancer Consumer Advisory Committee
  • Rare Lung Disease Consumer Advisory Committee – representing Interstitial Lung Disease (ILD), Idiopathic Pulmonary Fibrosis (IPF), Pulmonary Fibrosis (PF) and Pulmonary Arterial Hypertension (PAH)
  • Bronchiectasis Consumer Advisory Committee

What is expected of a Lung Foundation Australia Committee Member?

Members of the consumer committees represent of all those impacted by lung disease and lung cancer, including patients, family carers and friends from across Australia.

Lung Foundation Australia seek people who are interested in learning more about the impact of lung disease and lung cancer in Australia, who are passionate about sharing their own lived experiences and hearing the perspectives of other committee members. All members will be open, honest, and accountable.

Members are invited to sit on a committee for a two-year tenure, and receive a formal welcome and induction from Lung Foundation Australia before commencing. They are expected to attend 3-4 committee meetings per calendar year, held by video conference.

The role of a member is voluntary, and Lung Foundation Australia provides remuneration for attending official committee meetings. Being a member also provides access to a confidential and free counselling service through our volunteer Employee Assistance Program (EAP).

Meet the Consumer Advisory Committee Members

  • Chronic Lung Disease Consumer Advisory Committee

    Representing Chronic Obstructive Pulmonary Disease and Chronic Lung Conditions

    Chair: Caroline Polak Scowcroft

    • Rebecca Bell
    • Ken Bottrell
    • Julie Hays
    • Kaye Powell
    • John Ruttle
    • Eva Lemenkuehler
    • Cathy Bowlay
    • Nigel Garvey
    • Kerry Sandford
  • Lung Cancer Consumer Advisory Committee

    Chair: Lorraine Tyler

    Deputy Chair: Tom Wood

    • Joanne Bladwell
    • Lisa Briggs
    • Marilyn Finn
    • Jorge Brandao
    • Georgia Smith
    • Michelle Shepherd
  • Rare Lung Disease Consumer Advisory Committee

    Representing Interstitial Lung Disease, Idiopathic Pulmonary Fibrosis, Pulmonary Fibrosis and Pulmonary Arterial Hypertension

    Deputy Chair: Bill Van Nierop

    • Maureen Bell
    • Linda Caddy
    • Kylie Corkery
    • Robyn Doyle
    • Philippa Ellis
    • John Price
    • Richard Moodie
  • Bronchiectasis Consumer Advisory Committee

    Chair: Michelle Stoneman

    • Rhys Constable
    • Grant Raja Ratnam
    • Marie-Antoinette Rogers
    • Joan Whyte
    • Kevin Coburn
    • Estelle McEnroe
    • Ilevelyse Shepley
    • Tonee Holley Knowles
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