Consumer Committees

The committees assist the organisation and Board by providing strategic advice on matters related to lung disease and lung health, through representing the interests of their lung disease and providing insight into the lived experience.

The committees may be asked to provide advice on a variety of issues and topics across the areas of information, support, research, advocacy and community awareness. Responsibilities include:

• To provide Lung Foundation Australia advice on lived experience with lung disease including the pressure points and impacts across the consumer journey.
• To advise and provide feedback on information, resources, campaigns and marketing activities used by Lung Foundation Australia to raise awareness of the prevalence, burden and consequences of lung disease.
• To review and be involved in the design, planning, implementation and maintenance of services and information resources.
• To identify and prioritise areas requiring advocacy and fundraising.
• To develop annual work plans to guide activity.

To represent the many disease areas we cover, Lung Foundation Australia has five consumer committees:

• Chronic Lung Disease Advisory Committee – representing COPD and Chronic Lung Conditions
• Lung Cancer Advisory Committee
• Rare Lung Disease Advisory Committee – representing Interstitial Lung Disease (ILD), Idiopathic Pulmonary Fibrosis (IPF), Pulmonary Fibrosis (PF), Pulmonary Arterial Hypertension (PAH) and Pulmonary Hypertension (PH)
• Young Lungs Consumer Advisory Committee
• Bronchiectasis Advisory Committee

Members of the consumer committees represent of all those impacted by lung disease, including patients, family members, carers and friends.

Lung Foundation Australia seek individuals with a thorough understanding of their disease area, are passionate about Lung Foundation’s mission and objectives, and who are open, honest and accountable.

Members receive formal inductions from Lung Foundation Australia at the start of their tenure and are expected to attend 2-4 meetings per calendar year.

The role of a member is voluntary, and Lung Foundation Australia covers all reasonable travel and accommodation expenses related directly to in-person attendance at official committee meetings.

Lung Foundation Australia has completed the appointment process for Consumer Advisory Committees 2020.

We are pleased to say we received 130 applications, for the 50 available positions. We believe the consumer voice is essential in helping us achieve our mission, so we were humbled by the number of applications received.

Lung Foundation Australia will call for expressions of interest to join our consumer committees prior to our next appointment round in 2022.

Chronic Lung Disease Consumer Advisory Committee – representing Chronic Obstructive Pulmonary Disease and Chronic Lung Conditions

Chair: Caroline Polak Scowcroft

Deputy Chair: Leesa Williamson

• Rebecca Bell
• Ken Bottrell
• Clayton Dyer
• Leonie Fackrell
• Julie Hays
• Joanna Lockyer
• Kaye Powell
• John Ruttle

Lung Cancer Consumer Advisory Committee

Chair: Terri Byrne

Deputy Chair: Tom Wood

• Selina Bennett
• Joanne Bladwell
• Lisa Briggs
• Marilyn Finn
• Bruno Galgano
• Alexandra Golledge
• Tamara Lindsey
• Natalie Papagiorcopulo
• Lorraine Tyler

Young Lungs Advisory Committee

Chair: Rebecca De Barba

• Rachel Blick-Hodge
• Natalie Crerar
• Liz Vuletich
• Susanna Walker

Rare Lung Disease Consumer Advisory Committee – representing Interstitial Lung Disease, Idiopathic Pulmonary Fibrosis, Pulmonary Fibrosis, Pulmonary Arterial Hypertension and Pulmonary Hypertension

Chair: Noni Strawbridge

Deputy Chair: Bill Van Nierop

• Maureen Bell
• Linda Caddy
• Lorraine Chandler
• Kylie Corkery
• Diana Cox
• Robyn Doyle
• Philippa Ellis
• David King
• John Price
• Sandra Richards

Bronchiectasis Consumer Advisory Committee

Chair: Michelle Stoneman

Deputy Chair: Sharon McInerney

• Rhys Constable
• Carmel Dowley
• Lindsey Dyason
• Grant Raja Ratnam
• Emma Reeves
• Anna Regan
• Marie-Antoinette Rogers
• Glenyce Smith