Nontuberculous mycobacteria (NTM) is a lung disease that can make you quite sick and damage your lungs. The bacteria that cause NTM lung infections usually grow slowly, and it can be hard to diagnose, even for experienced doctors. More and more people around the world are getting NTM, and we expect it will become even more common as people live longer.
These mycobacteria are found in many places in our environment. You can find them in soil, house dust, and even the water from your tap. You can come across them when you’re doing everyday things like showering or gardening. An infection can happen if you breathe in these bacteria from misty water, dust, or soil particles.
Anyone can get an NTM infection. However, some people have a higher chance of getting it, including:
- People who already have a lung disease
- People with weakened immune systems
- Older people
Symptoms
The symptoms of NTM can include:
- A cough
- Feeling unwell
- Feeling very tired
- Losing weight without trying
- Coughing up blood
- Night sweats
- Finding it hard to breathe
- Getting frequent chest infections
Getting a diagnosis
Diagnosis can be delayed as the bacteria that causes NTM lung infections grows slowly, and often affects those living with an existing lung disease such as Chronic obstructive pulmonary disease (COPD) or bronchiectasis. Your doctor may perform tests such as sputum tests (checking phlegm) and a chest CT scan.
Treatment
The treatment options for NTM are different for everyone. Your treatment plan will depend on your symptoms, any other health conditions you have, and other risk factors. Often, doctors use a combination of antibiotics to treat NTM for up to 18-24 months.
During treatment, the infection might become inactive. Even so, you will need to continue your medications for a set amount of time to help stop the infection from coming back.
Other ways to manage NTM may include:
- Airway clearance: Helping to clear mucus from your lungs.
- Pulmonary rehabilitation: A program to help you breathe better and improve your fitness.
- Diet and nutrition: Making sure you are eating well.
- Focusing on emotional well-being: Taking care of your mental and emotional health.
If you’re living with NTM, connecting with support services, like peer support groups, can be an important part of managing your condition. Remember that we’re here to support you, and you don’t have to go through this alone.
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