Childhood Interstitial Lung Disease (chILD)

Childhood Interstitial Lung Disease

Australian children with lung disease deserve a brighter future.

Interstitial and diffuse lung disease in infancy and childhood is a rare group of diseases that have a huge impact on children, their families, and the health care system. We know that families dealing with a rare disease, such as childhood interstitial lung disease (chILD) face very similar challenges including:

  • Delays in diagnosis and treatment due to limited awareness of their condition
  • Difficulty accessing information, the best service and treatment, either because of locality or because one does not exist
  • Difficulty navigating the health system and accessing support, whether this is in the form of equipment, financial or peer support
  • Difficulty finding a doctor to transition a child with a rare disease to appropriate adult services.

Lung Foundation Australia is working to fill these gaps through a range of resources and initiatives outlined below.

Young Lungs Program

Our Young Lungs Program brings national experts together with parents of patients and other key stakeholders around the country to raise awareness and increase support for children with chILD and other rare lung diseases. To find out more, please contact us.

For your patients

Parent Connect

Our Young Lungs Parent Connect service connects families with children who have rare lung disease and are going through a similar experience, based on location and diagnosis where possible.

Young Lungs Facebook Group

The Young Lungs Facebook Group aims to raise public awareness and increase support for parents of children affected by a rare lung disease. By creating a place for people to share their experiences, the group aims to inspire hope and expand awareness about rare lung diseases in children and the challenges these children and their families face. Visit facebook group

LungNet Newsletter
Encourage your patients to sign up up to our LungNet email newsletter for the latest information on support services, resources and events that will help them live well with their lung condition.