Lung Foundation Australia and the Centre of Research Excellence in Pulmonary Fibrosis are urging people not to dismiss the common signs of Pulmonary Fibrosis (PF), an incredibly serious lung disease this September as part of PF Awareness Month.
Lung Foundation Australia CEO Mark Brooke said it was vital to catch the progressive and potentially fatal disease, which stiffens and scars the lungs, as early as possible.
“Early diagnosis and treatment of pulmonary fibrosis can help slow disease progression and improve life for those living with this very serious disease,” Mr Brooke said.
“If you are breathless or have an unexplained cough, fatigue or weight loss, talk with your doctor today about pulmonary fibrosis.”
Marcia Hooper from Pelican Waters in Queensland wants Australians to take note of her story in the hope theirs may turn out differently.
“I had a cough for four years straight, and every time I had it checked I was told it was nothing to worry about – by the time I was sent to have the checks my lungs were down to just 58 per cent capacity,” Ms Hooper said.
“Please, if you have any of the common symptoms, talk to your doctor and don’t be afraid to get a second opinion. You are your own best advocate.
“PF is a very serious disease, and the earlier it’s caught, the better your chances of living a more normal life.”
The most common symptoms of pulmonary fibrosis are:
- Breathlessness
- Cough
- Fatigue
- Unexplained weight loss
CRE-PF Chief Investigator and Director of Interstitial Lung Disease, Royal Prince Alfred Hospital, Professor Tamera Corte said there had been a hugely promising new research breakthrough when it came to diagnosing pulmonary fibrosis.
“New technology involving an Artificial Intelligence (AI) program called SOFIA uses detailed scans to predict outcomes for patients with lung disease,” Prof Corte said.
“We’ve found SOFIA can predict outcomes more accurately, and could be a valuable tool in tailoring treatment plans for fibrotic lung disease, and creating more personalised care.”
Respiratory Physician and the Director of the Austin Hospital Associate Professor Nicole Goh said PF Awareness month was also a good reminder for health practitioners to recognise and investigate the signs of pulmonary fibrosis.
“When presented with patient breathlessness, cough, fatigue, or unexplained weight loss – think about Pulmonary Fibrosis – listen to your patient’s chest, order a chest x-ray and refer to your local specialist,” Assoc Prof Goh said.
PF Awareness advocate Trevor Allan from Wollongong was diagnosed with Idiopathic Pulmonary Fibrosis in 2013 and wants others living with the disease to know they are not alone.
“There is a whole community of assistance out there for you, as well as free resources and support services” Mr Allan said.
“Treatment and support can slow the progression of the disease and help you to live well.”
Lung Foundation Australia is a trusted resource for those looking for detailed information about pulmonary fibrosis symptoms, diagnoses and treatments.
The organisation has a range of factsheets and booklets with information for living well with PF, as well as a support group to connect you with others who understand.
For media enquiries please contact:
Lung Foundation Australia Media and Communications Specialist
Anna Jeffries
0408 191 192
annaj@lungfoundation.com.au