Childhood Interstitial Lung Disease

It can be a very challenging and emotional time when you are a parent or carer of a child who has been diagnosed with Childhood Interstitial Lung Disease (chILD). Information and research into this group of rare lung diseases can be scarce. Australian children with lung disease deserve a brighter future, and this is a goal we are working towards.

chILD is a broad name for a group of rare lung diseases that can affect infants, children and adolescents. It may also be called chILD syndrome or children’s diffuse lung disease. “Interstitial” refers to the tissue and space around the air sacs of the lung where oxygen is absorbed into the blood. In chILD this absorption of oxygen is impaired. Diseases included in chILD are:

  • Surfactant protein metabolism disorders
  • Alveolar capillary dysplasia and other developmental lung disorders
  • Pulmonary interstitial glycogenosis (PIG)
  • Hypersensitivity pneumonitis
  • Neuroendocrine cell hyperplasia of infancy (NEHI)
  • Diseases associated with immunological problems.

It is important to remember that every child experiences chILD differently and symptoms and treatments will vary.