Lung Foundation Australia has announced that LAM Australia has merged with the national lung health charity, marking a significant milestone in support for people living with lymphangioleiomyomatosis (LAM), a rare and progressive lung disease that primarily affects women.
According to LAM Australia, the disease is estimated to impact three to seven diagnoses per million women.
By combining resources, expertise and networks, the partnership strengthens national coordination of care, amplifies the voice of the LAM community and creates a sustainable platform for future advocacy and research. The merger aligns with Lung Foundation Australia’s mission of Healthy Lungs for All.
Lung Foundation Australia CEO Mark Brooke said the merger reflects a shared commitment to improving outcomes for people living with rare and complex lung conditions.
“This partnership ensures the LAM community has a stronger, more visible voice and access to nationally coordinated support,” Mr Brooke said.
“Rare diseases can be isolating. By working together, we can strengthen advocacy, expand support services and invest more in research that has the potential to change lives.”
Under the merger, LAM Australia’s established peer support network and community programs will be integrated into Lung Foundation Australia’s national services, expanding access to trusted information, connection and care for people living with LAM and their families.
Both Lung Foundation Australia and LAM Australia have partnered to jointly fund a PHD scholarship and are looking forward to doing this into the future.
A dedicated LAM Consumer Advisory Committee will be chaired by Louise and will be established to ensure lived experience continues to guide advocacy, research priorities and program design.
“Together, we are better positioned to advocate for policy change, increased funding and improved access to care. This merger enables a renewed and dedicated focus on LAM research, including support for clinical trials and emerging researchers,” he said.
LAM Australia representatives welcomed the partnership, describing it as a positive step forward for the community.
“This partnership provides long-term stability and reassurance for people living with LAM,” President Alison McIvor said.
“Being part of Lung Foundation Australia means the LAM community remains connected, heard and supported, while benefiting from national infrastructure, advocacy strength and research leadership,” Ms McIvor said.
Lung Foundation Australia acknowledges the dedication of LAM Australia’s community, volunteers and supporters in making the merger possible and looks forward to working together to create lasting impact.
Was this page helpful?
Good job! Please give your positive feedback
How could we improve this post? Please Help us.
