Women’s health and PAH

Pulmonary Arterial Hypertension (PAH) is a rare lung disease that predominantly affects women. Although the disease itself doesn’t affect hormone levels there are many important implications for women’s health.

We spoke with A/Prof Rachael Cordina, clinical academic cardiologist, about women’s health and PAH. Watch the webinar video or read more below.  

Please note: the information in this blog is of general nature only. Speak to your treating healthcare team for specific advice on your health and wellbeing. 

Contraception and PAH 

Accidental pregnancy can create an incredibly stressful situation and the need to make difficult decisions. It is important to discuss with your doctor a reliable form of contraception – the Mirena or Implanon are generally recommended. In most cases, oestrogen containing contraceptives like ‘the pill’ should be avoided. 

Menstruation 

Women living with PAH may experience heavier periods and iron deficiency, especially those on blood thinners like warfarin. Maintaining normal iron stores is important to reduce fatigue, improve exercise capacity and oxygen delivery to the tissues. There are many safe treatments available to help manage heavy periods but some commonly used medications that contain oestrogen or reduce bleeding (such as tranexamic acid) are best avoided as they increase the risk for blood clots so check with your PAH doctor before commencing any new medication. 

Libido and Sex 

Libido and sex drive in women with PAH can be affected by the setting of illness. Depending on the severity of the disease, your exercise capacity will vary. Discuss with your doctor to find out your safe levels of exertion. 

Pregnancy and PAH

For the vast majority of women living with PAH, pregnancy is dangerous for both mother and baby and so most women are advised not to become pregnant.

Coming to terms with not being able to safely carry a pregnancy can be difficult. Speak to your GP about a mental health plan if you need emotional support. Your specialist will also be able to recommend other options, including surrogacy and adoption.

If you do choose to have a pregnancy, careful planning and expert care are essential.

Menopause 

In general, it is recommended to avoid hormone replacement therapy, especially if you are not on a blood thinner like warfarin. If your symptoms are severe, there are non-hormonal therapies that can help including SSRIs and acupuncture.  

Connect to care today  
If you or a loved one are living with a lung condition, you’re not alone. Our Information and Support Centre team is here to provide you with support and connect you with reliable resources and services to help you live well with your condition.    

The centre is open Monday to Friday 8:00am to 4:30pm (AEST). Please note that this service does not offer medical advice.    

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