It’s important you have a clear understanding of the benefits and risks to you and how it may impact on your health and privacy before you agree to take part. Depending on the type of research study or clinical trial you’re looking at participating in, it may be physically or emotionally demanding, and may require you to provide personal information.
You should ask the research project team for detailed information about the study, including the team’s credentials and experience. You might also find it useful to discuss the research study or clinical trial opportunity with someone independent of the study. This could be a member of your health care team.
- What is the research study about?
- What is the aim of the trial or research study? How will it help people living with a lung condition?
- Has this treatment been tested before? If so, what were the outcomes?
- What will happen to me during the trial or research study? What tests and treatments are involved?
- Will I have to take my regular medications while participating in the trial?
- With tests or treatments, what side effects might I experience?
- What are the advantages and benefits of taking part?
- What are the disadvantages and benefits of taking part?
- How long does the trial or research study go for?
- Is there any cost involved in participating?
- Who can I contact for support during and after the trial or research study?
- What happens with the results? How will I find out about the results? Will the results be published or given to anyone else?
- How will you protect my privacy? What sort of personal information will you collect? What will you do with it? Who will see it?
- If I want to withdraw from the study before it is finished or before the information is published, can I?