Making decisions about your pulmonary arterial hypertension treatment

In this video Cardiologist A/Prof Rachael Cordina discuss the importance of being involved in making decisions about your Pulmonary Arterial Hypertension (PAH) treatment and how to advocate for yourself to ensure your preferences and needs are heard. The PAH Patient Charter outlines the standards of holistic care that you should expect to receive. This includes your healthcare team listening to your preferences and involving you in decision-making, and being informed of the full range of evidence-based treatment options available to you.

Being actively involved in your healthcare is crucial. It’s important to feel comfortable with your healthcare team and to ask questions. Shared decision-making is key, and if you feel unheard, it’s essential to voice your concerns. If necessary, consider seeking alternative healthcare providers to ensure a good relationship with those caring for you.

There are many new treatments for pulmonary arterial hypertension. If you hear about new treatments, discuss them with your physician. Specialists are usually aware of the latest options and can provide detailed information. Always feel free to ask questions and engage with your healthcare.

While researching online, be cautious about the sources of information. Not all online content is accurate. Focus on reputable organisations and patient websites with medical input. If you feel lost or that communication with your healthcare team is lacking, let them know. Sometimes, talking to a nurse or writing a note can help.

If you still feel uncomfortable after raising concerns, it’s within your rights to seek another team. Ensure the new team is experienced in PAH. Advocate for yourself and remember that you are the most important person in your healthcare journey. If you or someone you know is affected by PAH, reaching out to the Lung Foundation Australia can provide valuable support and information. They are dedicated to helping patients navigate their journey and access the best possible care. For more information and support, individuals can contact the Lung Foundation Australia’s Information and Support Centre at 1800 654 301 or visit their website.