Managing challenging symptoms: PF/ILD

This resource, managing challenging symptoms of pulmonary fibrosis and interstitial lung disease, is a recording of the patient session presented at the Australasian Rare Lung Disease Conference. Managing symptoms like breathlessness, cough, and fatigue in respiratory illnesses involves addressing both physical and psychological effects. Anxiety and depression are common, often exacerbated by social isolation. Effective symptom management requires a multidisciplinary approach, including respiratory physicians, GPs, and palliative care specialists. Pulmonary rehabilitation focuses on symptom relief and improving quality of life. Despite the challenges, ongoing research is enhancing our understanding and treatment of these symptoms. The European Respiratory Society’s guidelines emphasise a stepwise approach, starting with identifying and treating underlying conditions, followed by targeted symptom management strategies. This holistic approach ensures comprehensive care for patients.

Coexisting medical problems are crucial in managing interstitial lung disease, especially in older patients who often have multiple conditions like obesity and heart disease. Psychological issues, such as anxiety and depression, are common, affecting about half of these patients. Addressing these mental health concerns is vital, as untreated psychological issues can exacerbate breathlessness. Poor sleep is another significant factor, often requiring non-medication approaches like melatonin. Effective symptom management involves a multidisciplinary approach, including respiratory and palliative care services. Techniques like breathing exercises, physical activity, and using aids like four-wheel frames can significantly improve quality of life.

Effective symptom management involves addressing coexisting medical conditions, psychological issues, and using non-drug approaches like hydration strategies and speech therapy for cough. Physical activity remains crucial for managing fatigue and overall well-being.

Managing treatment side effects is crucial, and patients should discuss any issues with their healthcare provider for possible dose adjustments. Supportive and palliative care are essential for improving quality of life and managing symptoms, and can be provided by various healthcare professionals, not just specialists. It’s important for patients to advocate for their needs and seek help from their healthcare team to manage symptoms effectively. Ongoing research aims to provide new treatments and improve patient care.