For Barbara Prins, a diagnosis of Bronchiectasis and Chronic Obstructive Pulmonary Disease (COPD) in 2020 changed everything. An active, independent person, she suddenly found herself navigating a condition she had never heard of – one that left her isolated, anxious, and unsure of where to turn.
A lifeline in a time of uncertainty
Barbara found navigating lung disease was filled with challenges – recurring infections, breathlessness, and the heartbreaking reality of staying away from her grandchildren to avoid illness. But amidst the uncertainty, she found a beacon of hope: Lung Foundation Australia.
A simple online search led her to a world of support she never knew existed. Through the Information and Support Services, Barbara discovered specialist telephone nurses, peer support groups, and a wealth of online resources – all designed to help people like her manage their condition and regain control of their lives.
“The nurse I spoke to was incredible. She took the time to explain everything to me – things my GP never even mentioned,” Barbara shares. “Because of her, I learned about pulmonary rehab, how to use an action plan, and the tools available to help me breathe easier.”
More than information – a community of support
Beyond medical advice, Barbara found something equally important: a sense of community.
Through peer support groups and webinars, she connected with others who truly understood what she was going through. She listened to specialists, learned practical management techniques, and most importantly, realised she wasn’t alone.
“Before Lung Foundation Australia, I didn’t know a single person with my condition,” Barbara says. “Now, I’ve met people who get it. The webinars, the support groups – it has changed my whole outlook.”
Living well with lung disease
With the right knowledge and support, Barbara has transformed how she manages her condition. She attends a rehabilitation gym twice a week, follows a structured exercise plan, and confidently advocates for herself in the healthcare system.
“I went from feeling helpless to feeling empowered,” she says. “I know what to ask for, I know how to manage my symptoms, and I don’t feel alone anymore.”
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