Tests for LAM
Your doctor may use a range of tests to diagnose LAM, including:
- your medical history and symptoms
- a physical examination
- lung function tests to check how well your lungs are working
- a CT scan, which can show the lung cysts typical of LAM
- a blood test to measure levels of a protein called VEGF-D, which can help confirm a diagnosis
Your doctor may also check for conditions linked to LAM, such as tuberous sclerosis complex (TSC) or non-cancerous kidney growths.
Sometimes, more tests are needed to rule out other lung diseases that can also cause lung cysts. If the diagnosis is still unclear, your doctor may recommend a lung biopsy. This procedure involves taking a small sample of lung tissue to be examined under a microscope.
LAM and tuberous sclerosis complex (TSC)
Most people with LAM do not have tuberous sclerosis complex (TSC). However, because the two conditions can be linked, your doctor may look for signs of TSC when diagnosing LAM.
TSC is a genetic condition that can affect different parts of the body. Some people have noticeable symptoms, while others have very mild symptoms and not realise they have the condition.
Your doctor may recommend genetic testing to check for TSC. This can help confirm your diagnosis and provide important information about family planning, as TSC can be passed from parent to child.
Help create a brighter future for the LAM community
The LAM community is raising $50,000 to support a dedicated LAM Clinical Fellowship. By donating you can help build specialist LAM clinical and research expertise in Australia, strengthening knowledge, care and future research for people living with LAM.
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