Understanding long COVID

The Understanding Long COVID booklet by Lung Foundation Australia is a comprehensive guide designed to support individuals who have been diagnosed with, or suspect they may have, post-acute COVID-19 or chronic COVID condition, hereafter called “long COVID.” This resource aims to help people navigate their long COVID journey by providing valuable information on the nature of long COVID, its diagnosis, and effective management strategies. The information has been developed by a group of healthcare professionals with a special interest in long COVID, as well as individuals living with long COVID and other related conditions. It is important to note that this booklet serves as a general guide and does not replace the personalised information provided by your healthcare team.

The booklet covers several key areas:

• What is long COVID and how is it diagnosed: Learn about the definition of long COVID, the common symptoms experienced by those affected, and the challenges in diagnosing this condition. The booklet explains that long COVID can present a wide range of symptoms, making diagnosis complex due to the lack of a single diagnostic test and the variability in symptoms among individuals.
• Practical advice on managing symptoms: Find practical advice on managing various symptoms associated with long COVID, such as fatigue, breathlessness, cough, brain fog, cardiac symptoms, and postural orthostatic tachycardia syndrome (POTS).
• Tips for healthcare appointments and emotional wellbeing: The booklet offers guidance on how to prepare for healthcare appointments, effectively communicate with healthcare providers, and discuss your condition with family and friends. It also addresses the emotional and mental health aspects of long COVID.
• Other tips: The booklet includes recommendations for maintaining a healthy lifestyle and provides advice for returning to work and school.

The Understanding Long COVID booklet is a valuable tool for anyone affected by long COVID, offering evidence-based information and practical strategies to navigate this condition.