September marks Pulmonary Fibrosis (PF) Awareness Month, a globally recognised awareness initiative aimed at raising awareness about the disease, its symptoms and the need for support.
Being told you or someone you love has PF or Idiopathic Pulmonary Fibrosis (IPF) can be a very overwhelming and frightening experience. PF is a complex disease and medical information can be limited or difficult to understand. There may be many decisions to consider about treatment, as well as emotional and practical changes to your day-to-day life.
But, you’re not alone. Lung Foundation Australia has a range of free resources and support services available to help you live your best life. Download our free resource pack to connect to care today.
Access free resources, services and much more by downloading the PF resource pack.
“There are also emotional issues, not just the physical and medical issues but how people feel about their diagnosis and life in general… having support and resources is invaluable.”
– Greg, living with PF.
PF resource pack:
- Fact sheets – In collaboration with the Centre of Research Excellence in Pulmonary Fibrosis, Lung Foundation Australia developed evidence-based fact sheets for people living with PF and IPF. Topics include managing progression and antifibrotic treatments.
- Peer support – Our support group programs connect people with a similar lived experience. These services allow you to share experiences with someone who ‘gets it,’ providing mutual encouragement and understanding. We have a range of options available including face-to-face, virtual and one-to-one.
“Diagnosis of Idiopathic PF (IPF) is a daunting experience … but through Peer Connect, I have someone to share my thoughts with. Someone who understands because they too have IPF.”
– Marilyn (pictured above), living with IPF.
- Educational videos – Hear information, advice and support on living with PF from experienced health professionals, as well as other patients sharing their lived experience.
- Life with Pulmonary Fibrosis booklet – This easy-to-navigate resource was developed in collaboration with leading healthcare professionals to help you manage PF. It covers a range of topics including diagnosis, treatment, exacerbations and getting around.