Australian Bronchiectasis Registry

Non-cystic fibrosis (non-CF) bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. There is currently no cure for non-CF bronchiectasis and little information is available on the disease’s incidence, diagnosis or mortality rates in Australasia.

The Australian Bronchiectasis Registry is a non-commercial research project that has been initiated by a group of Australian Respiratory Specialist doctors together with Lung Foundation Australia.

The main aims of this registry are to identify and collect health information from patients with non-Cystic Fibrosis (non-CF) Bronchiectasis for doctors to research the causes and to improve treatments. Ultimately, we want to discover a cure or vaccination for this debilitating disease which affects both children and adults.

The project has gained strong support from the international Bronchiectasis network. A key collaborative partnership with the American Bronchiectasis Registry and the European Bronchiectasis Registry has been formed allowing us to combine our knowledge and expertise to ensure the best research outcomes.

Recruitment  opened in January 2016 at Concord Hospital with a staggered roll-out of the Registry commencing in NSW and then to each State and Territory, as soon as the required research ethics approvals are received.

State or TerritoryHealthcare CentrePrincipal Investigator
New South WalesConcord Hospital
Wyong Hospital
Westmead Hospital
A/Prof Lucy Morgan
Dr Cameron Hunter
A/Prof Peter Middleton
QueenslandLady Cilento Children’s Hospital
Greenslopes Hospital
Mater Hospital Brisbane
The Prince Charles Hospital
Prof Anne Chang
A/Prof Rachel Thomson
Dr Lucy Burr
Dr Daniel Smith
VictoriaMonash Medical CentreDr Paul King
South AustraliaRoyal Adelaide HospitalDr Chien Li Homes-Liew
Western AustraliaRoyal Perth HospitalProf Grant Waterer
Northern TerritoryAlice Springs HospitalA/Prof Graeme Maguire

Recruitment is planned to commence in January 2016 starting with NSW centres and then in the each State and Territory as soon as the required research ethics approvals are received.

Following the initial stage to demonstrate the system works well, a broader roll-out of registrations from a mix of metropolitan, rural and remote healthcare centres in Australia and New Zealand is planned to commence in 2018.

If you would like to register your interest to be kept up-to-date on the Australian Bronchiectasis Registry’s progress you may like to contact the ABR Project Manager (Dan Jackson) directly:

Email: abr@lungfoundation.com.au

Phone: 0478 947 428

Lung Foundation Australia invites financial support to assist us to undertake this important research

The Respiratory Infectious Disease (RID) program, including the establishment of an Australian Bronchiectasis Registry, is generously supported by the following:

Philanthropic Donation

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Bayer Healthcare
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Seed funding was generously received from:

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