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Interstitial Lung Disease Registry

The Interstitial Lung Disease (ILD) Registry provides a platform for consistency and continuity in data collection for patients with ILD.

The registry has been established in collaboration with a group of committed physicians caring for patients across the ILD/IPF space, using the framework of the successful Australian IPF registry. It was initially established across 4 sites, but with increased interest from around Australia and New Zealand, the ILD Registry is expanding to include an additional 13 sites (total of 17). This is a significant step towards developing a comprehensive database of information for patients suffering from ILD.

Collecting data on people living with ILD helps to facilitate research, improve clinical management practices and maximise opportunities for patients to participate in clinical trials.

For further information about the ILD Registry, please contact us.