Your Voice

The Your Voice Lung Health Advocacy Program is Australia’s only consumer led, nationally coordinated political advocacy program. Members of our Your Voice advocacy program receive ongoing training and support to engage in targeted campaign activities across our portfolio of activities in lung cancer and lung disease.

We have two streams to the Lung Foundation Your Voice program:

  • Lung Cancer Advocates: individuals affected by lung cancer (either as a patient, direct carer, family or friend of an individual with lung cancer and lung cancer health professionals). Your Voice Lung Cancer Advocates  – focused on improving outcomes for lung cancer patients and their families – engage with a range of stakeholders to achieve the objectives set out in Making Lung Cancer a fair fight: a blueprint for reform; and
  • Lung Health Advocates: individuals affected by other lung diseases, including Chronic Obstructive Pulmonary Disease (COPD) and Pulmonary Arterial Hypertension (PAH).

We welcome expressions of interest for both programs, however; only Lung Cancer Advocates and PAH Lung Health Advocates have a training program scheduled for 2020. Other condition specific advocacy programs will be developed based on demand and resourcing.

We accept expressions of interest to participate in the program throughout the year. Our 2020 training program will commence in the second half of 2020.

Latest campaigns

Lung Cancer Nurses

Each year, approximately 12,700 Australian men and women will be diagnosed with lung cancer, yet there are only 12 full time equivalent specialist lung cancer nurses to help these Australians navigate the complex clinical pathways they face on their cancer journey. This is not a fair go.

We know from the experience of people living with  breast and prostate cancer, accessing specialist cancer nurses helps them to gain access to the right treatments at the right time, reduce hospital admissions, improve quality of life and increase  their chance of surviving cancer.

The Federal Government funds 98 breast cancer nurses and 62 prostate cancer nurses; but no lung cancer nurses. Our Lung Cancer Scorecard presents a snapshot of the inequities faced by lung cancer patients.

We are calling on the Federal Government to fund 15 lung cancer nurses in the 2020/2021 federal budget, to provide much needed support and care to the Australians affected by the biggest cancer killer in this country.

Our 2020 parliamentary e-petition calling on the House of Representatives to support our budget request was signed by 4225 Australians. John Alexander OAM MP and Steve Georganas MP, as co-chairs of the Parliamentary Friends for Lung Health and Lung Cancer will present the petition to the House when parliament resumes its normal operations.

National Lung Cancer Screening Program

In Australia, lung cancer is the leading cause of cancer death in both men and women. The ability to save lives by screening for lung cancer using low-dose computed tomography chest scans (LDCT) is no longer in doubt, following the publication and presentation of data from screening programs in the Unites States and the United Kingdom. However, Australia does not have a national lung cancer screening service.

As a result of engagement by Your Voice Advocates and Lung Foundation Australia, the Minister for Health tasked Cancer Australia, in October 2019, with assessing the feasibility of conducting a lung cancer screening service in Australia. Information on the Cancer Australia enquiry can be found here.

Dedicated Respiratory Research Fund and education and support for Australians

Now, more than ever, Australians appreciate that our respiratory health determines how we live and work.  A respiratory disease (COVID-19) has, in a blink of the eye, destroyed livelihoods, killed Australians, crippled the national and global economy, and radically altered our way of life.  Lung Foundation Australia is calling on the Federal Government to establish a dedicated respiratory research fund to secure the lung health of Australians through investment in world leading research to understand, treat and prevent lung diseases.

Protecting the Australian way of life will also require ongoing nation-wide lung health education and support to inform and empower Australians to maintain good lung health and prevent adverse health outcomes for individuals and communities. We are working with our advocates to ensure there is nationally consistent, clear, best-practice education and support available to all Australians.

We will post our submission to the Senate Select Committee on COVID-19 and our 2020/2021 budget submission here soon.

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