LungNet News

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In this issue:





Staff News

Information and Support Centre Coordinator and COPD-X Executive Officer Juliet Brown and her husband Joe welcomed their son Samuel John on 9 October 2014. Juliet is currently on maternity leave and will return around the middle of the year. Project Manager – Chronic Lung Disease Support Melissa Ram who was on maternity leave last year has…

February 23, 2014 at 12:49 pm by Laura Guthrie

Lung Foundation Australia Welcomes New CEO, Heather Allan

In June, Lung Foundation Australia was pleased to welcome Mrs Heather Allan as our new Chief Executive Officer. Bringing a wealth of national and international public health communication and issues management experience to the role, Mrs Allan has worked for the Lung Foundation since 2005. Her most recent role was as the Director of Marketing…

August 11, 2014 at 10:25 am by Laura Guthrie

How to Get A Better Night’s Sleep

Good sleep is one of life’s pleasures. Most people can think of a time when they slept well and sleeping really wasn’t an issue. Unfortunately for many, sleep is a problem and complaints of poor sleep are common. This is particularly the case for those with lung disease. Reports of insomnia occur in 25-48% of…

August 11, 2014 at 10:30 am by Laura Guthrie

Closure of Westlung Support Group, Wentworthville, Sydney

Lung Foundation Australia advises readers of the closure of the Westlung Support Group in June. The Committee and members came to this difficult decision due to a declining membership base. The Group had been running for over 15 years and initially started at Westmead Hospital with the aim of providing ongoing support and friendship to…

August 11, 2014 at 10:43 am by Laura Guthrie

Lung Foundation Australia Staff “Check in with their lungs”

Whilst the television advertisements and bus shelter posters for Lung Foundation Australia’s national awareness campaign have now come to an end, we are still asking Australians to “check in” with their lungs. To help with the promotion, Lung Foundation staff recently donned their green campaign t-shirts and “checked in with their lungs”. Visit www.lunghealthchecklist.com.au to…

August 11, 2014 at 10:48 am by Laura Guthrie

New Benefits for Lung Foundation Australia Members

Lung Foundation Australia launched a new membership rewards program in July, offering more benefits for joining the organisation. As well as helping the Lung Foundation, Supporter Members and Health Professional Members can now access a suite of more than 15 providers offering a variety of discounts ranging from airline lounge membership programs, shopping, travel and…

August 11, 2014 at 10:52 am by Laura Guthrie

New Lung Foundation Palliative Care Resource: Quality of Life Checklist

Lung Foundation Australia has developed a Quality of Life Checklist to help patients and carers identify whether they might benefit from some extra information or support in managing their lung disease. The checklist may be particularly applicable if everyday tasks and activities are becoming increasingly difficult to maintain. When diagnosed with a chronic or terminal…

August 11, 2014 at 10:54 am by Laura Guthrie

Committee News

Lung Foundation Australia welcomes A/Professor Ian Yang as the new Chair of the COPD National Program. Ian will be well-known to many as he has been an active member of the COPD National Program’s Coordinating Committee since 2007 and has held a position on the COPD-X Guidelines Evaluation Committee since 2010. Ian is taking over…

August 11, 2014 at 11:01 am by Laura Guthrie

E-cigarettes: Recent Developments

Lung Foundation Australia is strongly urging relevant government agencies to further regulate access to e-cigarette devices and components, nicotine-filled cartridges and non-nicotine cartridges. Lung Foundation CEO, Heather Allan, said the Food and Drug Aministration (FDA) in America had recently introduced new guidelines and called on the Australian government to follow suit. “At the moment there…

August 11, 2014 at 11:03 am by Laura Guthrie

From the CEO’s Desk

Dear Readers, It is with some trepidation that I pen my first message from the CEO’s desk. I am stepping into what feel like very roomy shoes left by William Darbishire, the man who has led the Lung Foundation over the past 12 years. When William first asked me to come and work for the…

August 11, 2014 at 11:13 am by Laura Guthrie

Start Planning for World COPD Day: Wednesday 19 November

Last year’s World COPD Day was our biggest event to date, and we’d like 2014 to be BIGGER! We are inviting patients and health professionals to get involved by choosing from a variety of options: Have a static display, wear a “What is COPD?” t-shirt, put up some posters and balloons and place the Lung…

August 11, 2014 at 11:16 am by Laura Guthrie

Lung Cancer Network Australia (formerly the Kylie Johnston Lung Cancer Network) Update

New Name for Lung Cancer Patient/Carer Initiative Following consultation with our communities of patients and supporters, the Lung Foundation is pleased to announce that the Kylie Johnston Lung Cancer Network (KJLCN) has been rebranded Lung Cancer Network Australia. This new name more directly reflects our target audience and will make it easier for lung cancer…

August 11, 2014 at 11:26 am by Laura Guthrie

Diary Dates 2014

Lung Health Patient Education Day, Brisbane – 3 September Lung Health Patient Education Day, Sydney – 18 September Regional Patient Seminar, Bundaberg – 2 October Australian Lung Cancer Conference – 16-18 October Lung Health Patient Education Day, Melbourne – 24 October Lung Health Patient Education Day, Campbell Town, Tasmania – 25 October Lung Health Patient…

August 11, 2014 at 11:33 am by Laura Guthrie

Lung Foundation Calls for Ambassadors

Help us spread the word about the importance of good lung health. Lung Foundation Australia is recruiting volunteer ambassadors to speak to their local communities and businesses about the importance of lung health. These ambassadors will become part of the public face of Lung Foundation Australia by raising awareness of the impact of lung disease…

August 11, 2014 at 11:56 am by Laura Guthrie

Lungs in Action Latest News: Wollongong Services Unite For a Common Goal

After completing pulmonary rehabilitation, it is important that a person with a chronic lung condition has access to a safe and supportive ongoing community based exercise class specific to their health condition to help them keep well and out of hospital. Such a program did not exist in Wollongong until recently, when services within the…

August 11, 2014 at 12:02 pm by Laura Guthrie

Staff News

In April, we were sorry to say goodbye to Karen Wright, a long-serving Lung Foundation Australia staff member who had worked as the Project Officer within the COPD National Program since 2006.  She was well known to those involved in World COPD Day activities, the members of the COPD Patient Advocate Group (CPAG) and many…

August 11, 2014 at 12:03 pm by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

New Hope for People with IPF Lung Foundation Australia welcomed the findings of two major studies released at the American Thoracic Society 2014 Congress in San Diego in April, which showed IPF could be successfully treated with new medicines that slow disease progression by “blocking the signalling pathways” that cause the scarring of lung tissue.…

August 11, 2014 at 12:05 pm by Laura Guthrie

Better Living with Your Lung Disease

Do you feel isolated living in a regional area? Lung Foundation Australia has developed the Better Living with Your Lung Disease project, specifically for people living in regional areas, who often do not have the same access to health services and information. Better Living with Your Lung Disease consists of a 10 part educational DVD…

August 11, 2014 at 12:25 pm by Laura Guthrie

Australian COPD and Patient Advocates Group Report (CPAG)

Hello readers and welcome to my first article as the new Chair of CPAG. I hope that my experiences with COPD and pulmonary fibrosis, resulting in a double lung transplant in 2013, will be of value to CPAG members, patients and Support Groups and Lung Foundation Australia as a whole. I, along with Deputy Chair…

August 11, 2014 at 2:15 pm by Laura Guthrie

Establishing a Nurse-Led COPD Clinic

COPD is a medical term that stands for Chronic Obstructive Pulmonary Disease. The word “Chronic” means it won’t go away; the word “Obstructive’ means limiting airflow; the word “Pulmonary” means in the lungs; and the word “Disease” means an illness. Many people with COPD have a combination of emphysema, chronic bronchitis and asthma. You may…

August 11, 2014 at 2:18 pm by Laura Guthrie

Farewell to Henry “Hank” Bertram Lizotte

Tribute submitted by Dr James Markos, Respiratory Physician, Launceston General Hospital and Lung Foundation Australia State Chair, Tasmania Lung Foundation Australia is saddened by the passing of one of its longstanding supporters, Hank Lizotte who passed away on 14 March 2014 after battling illness since 2011. Hank and his seven children started the Breath of Life Music…

August 11, 2014 at 2:24 pm by Laura Guthrie

From the CEO’s Desk

Dear Readers, As I pen this message on 5 September, the entire Lung Foundation Australia staff are thinking about November. As most of you know, November is Lung Health Awareness Month. Traditionally, the Lung Foundation has developed programs to mark important public health annual calendar “days” in November, including World COPD Day, Asbestos Awareness Week,…

October 10, 2014 at 2:31 pm by Laura Guthrie

Staff News

          Baby bottles and prams are becoming the talk of the lunchroom at the Lung Foundation office in Brisbane. On 5 August, Project Manager – Chronic Lung Disease Support, Melissa Ram and her husband, Ash welcomed into the world their first baby, Noah Gabriel who tipped the scales at 8lb 3oz. Mel…

October 10, 2014 at 2:42 pm by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

It has been an exciting year for the Australian IPF Registry and more than 500 participants are now contributing to this valuable resource. As the size of the Registry grows so does its profile and the interest in this important initiative also increases. Dr Tamera Corte, Chair of the Registry Steering Committee was invited to…

October 10, 2014 at 3:12 pm by Laura Guthrie

Australian COPD Patient Advocate Group Report (CPAG)

Hello readers and welcome to my second article as Chair of CPAG. During the last quarter, CPAG members have met regularly by teleconference and the Group is pleased to be able to contribute to the work being carried out by Lung Foundation Australia’s COPD national program. An ongoing area of interest for CPAG is advocacy…

October 10, 2014 at 3:15 pm by Laura Guthrie

World COPD Day: Wednesday 19 November

Wednesday 19 November is World COPD Day and once again this year, Lung Foundation Australia is raising awareness of the prevalence and impact of COPD. One in seven Australians 40 years or older has COPD and half of those who have progressed to a stage where they are experiencing symptoms will not know that they…

October 10, 2014 at 3:20 pm by Laura Guthrie

Flying High or Possibly Low on Oxygen?

Sharon Lagan BSc CRFS, Respiratory Scientist, Department of Pulmonary Physiology & Sleep Medicine, Sir Charles Gairdner Hospital, Perth, WA Dr Ivan Ling MBBS FRACP, Respiratory and Sleep Physician, Department of Pulmonary Physiology & Sleep Medicine, Sir Charles Gairdner Hospital, Perth, WA   Flight has become an accepted form of travel for so many of us…

November 10, 2014 at 2:26 pm by Laura Guthrie

Distance is No Barrier to Gaining Knowledge

After attending the Better Living with Your Lung Disease Regional Patient Seminar in Townsville in both 2013 and 2014, Jeanette and Bert Part found themselves wanting more. The Parts valued the knowledge and understanding they had obtained at these events so highly that they recently travelled over 2,500kms to attend the Brisbane Patient Education Day.…

November 10, 2014 at 2:46 pm by Laura Guthrie

Am I Too Old to Stop Smoking?

Dr Christopher Worsnop MBBS BSc PhD FRACP FCCP, Respiratory and Sleep Physician, Austin Hospital, Melbourne; Adjunct Associate Professor, RMIT University, Melbourne Conflict of Interest: Registered Victorian Masters athlete who gets out there and has fun! Smokers are never too old to stop smoking. None of us is ever too old to start doing something positive…

November 10, 2014 at 2:50 pm by Laura Guthrie

Diary Dates 2014

Lung Health Awareness Month – November Lung Cancer Awareness Month – November Regional Patient Seminar, Mandurah – 11 November Regional Patient Seminar, Port Macquarie – 12 November International Lung Cancer Awareness Day – 17 November World COPD Day – 19 November Asbestos Awareness Week – 24-28 November

November 10, 2014 at 2:53 pm by Laura Guthrie

Lung Cancer Network Australia (formerly the Kylie Johnston Lung Cancer Network) Update

Kerrie Callaghan, Project Manager, Lung Cancer, Lung Foundation Australia New Lung Cancer Network Australia website launched Readers may be aware that we officially launched Lung Cancer Network Australia at the Australian Lung Cancer Conference on 15 October. The new website is now up and running and it can viewed by visiting www.lungcancernetwork.com.au. Your feedback is…

November 10, 2014 at 2:56 pm by Laura Guthrie

ASX Thomson Reuters Art Union 2014/15

It is Art Union time again and amazing prizes are up for grabs in the 2014/15 ASX Thomson Reuters Charity Foundation Art Union. This year, the preferred method of purchasing tickets is via our website www.lungfoundation.com.au/art-union. However, if you do not have internet access, please call us free call on 1800 654 301. Funds raised…

November 10, 2014 at 3:23 pm by Laura Guthrie

Lungs in Action Latest News: Hornsby Lungs in Action Maintains “Healthy Lifestyles”

Emma Gainer, Program Manager, Pulmonary Rehabilitation and Lungs in Action, Lung Foundation Australia It’s often the little things that we take for granted. For the majority of us gardening, housework or going for a walk are tasks we do on a regular basis with minimal effort or thought. However, for those living with a chronic…

November 10, 2014 at 3:27 pm by Laura Guthrie

Farewell to Lung Foundation Friends

Hilary Mulcahy Lung Foundation Australia’s staff and volunteers are deeply saddened by the passing of Hilary Mulcahy on 15 August. Hilary was a long-standing member of the LungNet News volunteer newsletter team and spent many hours labelling and packaging the newsletter. Hilary’s outgoing personality and ability to chat about any subject made her a popular…

November 10, 2014 at 3:29 pm by Laura Guthrie

Have you ever wondered how many people with chronic lung conditions use dietary supplements like fish oil, vitamin C or calcium? Or why people might take these kinds of supplements?

Researchers at the University of South Australia have been wondering about this as well! The 2011-12 National Nutrition and Physical Activity Survey (NNPAS) reported that 29% of Australians used dietary supplements (Australian  Bureau of Statistics, 20141), whereas an earlier survey of Australians aged 65 to 98 years found that 43% reported using some kind of supplement (Brownie et al…

November 13, 2014 at 3:46 pm by Laura Guthrie

From the CEO’s Desk

Dear Readers, When I last wrote the CEO message in preparation for our November edition of LungNet News, I shared with you our plans to launch an exciting new campaign – a campaign which challenges us all to think about what we can do… with Just One Breath. The Just One Breath campaign was officially…

February 23, 2015 at 10:00 am by Laura Guthrie

Understanding Allergic Bronchopulmonary Aspergillosis (ABPA)

A/Prof David Serisier, Director, Mater Hospital Adult Respiratory Medicine Department and Chair, Lung Foundation Australia Board Allergic bronchopulmonary aspergillosis (ABPA) is a disease of the airways in the lungs that occurs in response to the presence of a fungus called Aspergillus. There are many different types of Aspergillus, but Aspergillus fumigatus is the most common…

February 23, 2015 at 10:14 am by Laura Guthrie

New Patient Support Group

Lung Foundation Australia is pleased to announce the establishment of the Yarraly Mid West Lung and Respiratory Support Group in Geraldton, Western Australia. The group will meet on the second Monday each month at 1.30 in the Community Health Group Room at the Geraldton Hospital on Shenton Street. New members are most welcome and for…

February 23, 2015 at 12:50 pm by Laura Guthrie

Cancer Diagnosis Just a Breath Away

From Alcohol Analysis to Medical Diagnosis, the Breathalyser May Help Save Lives in More Ways Than One By Steph Nash, July 2014. This article has been reproduced with permission from Sydney Observer Magazine. Specific compounds found in exhaled breath may help diagnose lung cancer in its early stages according to a study released earlier this…

February 23, 2015 at 12:52 pm by Laura Guthrie

Diary Dates 2015

Lung Health Patient Education Day Canberra: 29 April Australasian Asthma Conference Brisbane: 4-5 May Lung Health Patient Education Day Perth: 14 May Lung Health Awareness Month: November Lung Cancer Awareness Month: November International Lung Cancer Awareness Day : 17 November World COPD Day: 18 November Asbestos Awareness Week: 23-27 November

February 23, 2015 at 12:53 pm by Laura Guthrie

Looking After your Health Can Be a Full Time Job!

Tanisha Jowsey, Laurann Yen and Ian McRae, Australian Primary Health Care Research Institute, Australian National University. Researchers at the Australian National University wanted to know how much time people spend on their health, so in 2010 they sent out a survey to find out. In an earlier study the team heard about difficulties people with…

February 23, 2015 at 12:54 pm by Laura Guthrie

Online Training for Health Professionals – Updated with New Medicines

Have the nurses and pharmacists that look after you completed the online training on COPD through the Lung Foundation? This training was recently updated to include six new medicines and two new inhaler devices that were released for Chronic Obstructive Pulmonary Disease (COPD) in 2014. The explosion in the medicines available for the management of…

February 23, 2015 at 12:56 pm by Laura Guthrie

Lung Cancer Network Australia

Kerrie Callaghan, Project Manager, Lung Cancer, Lung Foundation Australia Our Shine a Light on Lung Cancer Awareness Events Hit Double Figures in November Ten shine a light on lung cancer awareness events were held around Australia during Lung Cancer Awareness Month in November. We kick started the month with the first ever Townsville shine a…

February 23, 2015 at 12:58 pm by Laura Guthrie

Home Oxygen Booklet – Second Edition

The popular patient Home Oxygen booklet is now in stock after being revised and updated. The booklet aims to provide people who have been prescribed home oxygen therapy, or may be prescribed it in the near future, with information about: How home oxygen therapy works The equipment that is used Practical tips others have found…

February 23, 2015 at 3:30 pm by Laura Guthrie

Australian COPD Patient Advocate Group Report (CPAG)

Ross Lloyd, Chair We have had a busy few months since the last LungNet news. November was Lung Health Awareness month and this included World COPD Day held on 19 November. There were events throughout the country and COPD Patient Advocate Group (CPAG) members and other patients were called upon to speak to the media…

February 23, 2015 at 3:32 pm by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia More than 575 participants are now contributing to the Australian IPF Registry and more than 120 of these participants have provided a blood sample. As the Registry increases in size its value to researchers also increases. By participating in the Registry you are helping researchers…

February 23, 2015 at 3:47 pm by Laura Guthrie

World COPD Day: Wednesday 19 November

World COPD Day 2014 was another great year with approximately 240 events held across Australia. A wide range of activities took place including information displays, risk assessment and screening activities, walking events and even a treadmill challenge with hundreds of kilometres being clocked up. Events took place in GP practices, pharmacies, hospital foyers, exercise clinics…

February 23, 2015 at 3:49 pm by Laura Guthrie

Lungs in Action Latest News: Funding Update and Welcome to Newcastle Lungs in Action

Emma Gainer, Program Manager, Pulmonary Rehabilitation and Lungs in Action, Lung Foundation Australia As a regular LungNet reader you may already know Lungs in Action is Lung Foundation Australia’s maintenance exercise program specially developed for those who have completed pulmonary or heart failure rehabilitation. However, did you know these ongoing weekly exercise classes are now…

February 23, 2015 at 3:50 pm by Laura Guthrie

Better Living with Your Lung Disease

Melissa Ram, Project Manager – Chronic Lung Disease Support, Lung Foundation Australia The Better Living with Your Lung Disease DVD is a 10 part series to assist you in gaining the skills and knowledge to manage your disease and its symptoms with confidence. Listed below are the topics covered: Managing Your Lung Disease How Do…

February 23, 2015 at 3:51 pm by Laura Guthrie

A Tribute to Peter Tuffield

By Shane Talbot Sadly Peter “Tuffy” Tuffield lost his battle with lung cancer in April 2014 after a brave fight. When I mentioned lung cancer, what was the first thought which came to your mind? If it was a “smoker’s disease” then that is truly understandable. But actually, 20% of people diagnosed with lung cancer…

February 23, 2015 at 3:54 pm by Laura Guthrie

From the CEO’s Desk

Dear Readers, Twenty-five years ago on 5 March 1990, Lung Foundation Australia was born. Under the Chairmanship of inaugural Chair, Professor Geoffrey McLennan, and with the participation of many others, we were established as a patient-based organisation aimed at supporting those with lung disease and raising funds to support research. The first edition of LungNet…

May 1, 2015 at 1:00 am by Laura Guthrie

Recognising Our Lifetime Heroes and Research Award Winners

Lung Foundation Australia continued its 25th anniversary celebrations at the Annual Scientific Meeting of The Australia and New Zealand Society of Respiratory Science (ANZSRS) and The Thoracic Society of Australia and New Zealand (TSANZ) in March. This exciting conference brings together health professionals and researchers from the medical community to examine the leading issues in…

May 1, 2015 at 2:00 am by Laura Guthrie

Caring for the Carer

Hayley Carter, Communication Manager, Carers Australia Queensland When a loved one becomes ill, the person caring for them is often overlooked. But caring for a family member or friend who has a chronic or terminal illness comes with its own stresses. Carers are more likely to suffer with anxiety or depression than non-carers; they often…

May 1, 2015 at 3:00 am by Laura Guthrie

Wood Smoke Harms Your Lungs

Dr James Markos, Respiratory Physician, Launceston General Hospital and Lung Foundation Australia State Chair Tasmania Wood smoke is harmful to our health and especially to our lungs. It is made up of tiny particles, smaller than one thousandth of a millimeter. These tiny particles escape the filtering system in our nose and they penetrate deeply…

May 1, 2015 at 4:00 am by Laura Guthrie

New Patient Program: C.O.P.E –COPD.Online.Patient.Education

C.O.P.E – COPD. Online. Patient. Education is a new and free web-based resource for patients (and their carers) that will enable you to complete the educational component of pulmonary rehabilitation from the comfort of your own home. C.O.P.E is an easy to use, interactive and informative program and can be used to complement a pulmonary…

May 1, 2015 at 5:00 am by Laura Guthrie

Patient Stream to be Included in the 2nd Biennial Australian Rare Lung Disease Short Course

Nigel McPaul, Group Project Manager, Lung Foundation Australia   Lung Foundation Australia is proud to announce that registrations are now open for the Australian Rare Lung Disease Short Course 2015. An important part of the course will be a dedicated patient stream. The one and a half day short course, a joint venture between Lung…

May 1, 2015 at 6:00 am by Laura Guthrie

Dietary Supplement Use in People With Chronic Lung Conditions

Researchers at the University of South Australia are still looking for people to participate in their survey about supplement use. The short survey is open to ANYONE WHO HAS A CHRONIC LUNG CONDITION, regardless of whether they DO or DO NOT USE supplements. Greater detail can be found in the November issue of LungNet News.…

May 1, 2015 at 7:00 am by Laura Guthrie

Staff News

Since the last edition of LungNet News, we have welcomed Amelia Parsons to the new role of Events Assistant. Amelia will predominantly be assisting with the Australian Lung Cancer Conference, Australian Rare Lung Disease Short Course as well as other events.

May 1, 2015 at 8:00 am by Laura Guthrie

Australian COPD Patient Advocate Group Report (CPAG)

Ross Lloyd, Chair CPAG met on 16 February with full representation from all states and territories. The Group is growing and guest presenters are providing additional insight to patient advocacy issues. Three of the major issues discussed were: Advanced Care Planning Metro South Brisbane Hospital Service Clinical Nurse Lesley McLeod spoke about an Advanced Care…

May 1, 2015 at 8:01 am by Laura Guthrie

Diary Dates 2015

World Pulmonary Hypertension Day: 5 May Lung Health Patient Education Day, Perth: 14 May Regional Patient Seminar, Alice Springs: 29 May Lung Health Patient Education Day, Brisbane: 2 September Lung Health Patient Education Day, Sydney: 17 September Lung Health Patient Education Day, Adelaide: 14 October Australian Rare Lung Disease Short Course: 16 – 17 October…

May 1, 2015 at 8:02 am by Laura Guthrie

2015 Tax Appeal Helps Lung Foundation Australia Support You

Lung Foundation Australia will launch the 2015 Tax Appeal in May. Lung Foundation Australia CEO, Heather Allan, appealed for people to support the Lung Foundation’s Information and Support Centre by making a tax deductible donation. “We’ve seen a significant growth in the number of people contacting the Lung Foundation seeking support, education and links to community…

May 1, 2015 at 8:03 am by Laura Guthrie

Lung Cancer Network Australia Update

Kerrie Callaghan, Project Manager, Lung Cancer, Lung Foundation Australia   DVD – New Edition! Lung Cancer Understanding – Managing – Living The second edition of our lung cancer patient DVD, is now available and includes updated information about advances in diagnosis, new treatments and clinical trials. To order this free resource visit our website www.lungcancernetwork.com.au/patient-resources-support/lung-cancer-dvd/dvd-order-form or…

May 1, 2015 at 8:04 am by Laura Guthrie

Better Living with Your Lung Disease DVD Series

Melissa Ram, Project Manager – Chronic Lung Disease Support, Lung Foundation Australia   Better Living with Your Lung Disease is a suite of 10 short DVDs for people with lung disease. They aim to increase knowledge and confidence and will enable people to better manage their condition, its symptoms and their overall wellbeing. 1. Managing…

May 1, 2015 at 8:05 am by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia Researchers are finding the Australian IPF Registry a valuable source of information about Idiopathic Pulmonary Fibrosis (IPF). Thanks to the contributions of more than 600 patients with IPF now participating in the Registry, and their respiratory physicians, researchers have the opportunity to learn more about…

May 1, 2015 at 8:06 am by Laura Guthrie

Facts and Figures of Transplant

Shelley-Lee Waller, Principal Communication Advisor, DonateLife Queensland Last year, 1,177 Australians received a life-transforming organ transplant through the generosity of 378 organ donors whose families agreed to donation at the time of their loved one’s death. Living and deceased tissue donors also changed lives, restoring sight, heart function, mobility and quality of life to many…

May 1, 2015 at 8:07 am by Laura Guthrie

My Lung Donor was a Transplant Nurse

Ross Lloyd, Double Lung Transplant Recipient Each year, an international nursing organisation based in the USA hosts an essay competition where transplant patients can nominate their transplant nurse for an award. This is in recognition of the many nurses who help us before, during and after our transplant. This year, I submitted a nomination which…

May 1, 2015 at 8:08 am by Laura Guthrie

Medicines and Their Instructions: What Do They Mean and Are They Important?

Brea Pearce, Pharmacist, Terry White Chemists, Myer Centre, Brisbane Have you ever wondered why there are so many instructions on your medicine label or given to you by the pharmacist? Does it really matter whether your medicine is taken with food? Why is it important to swallow the tablet whole? Have you questioned why you…

August 1, 2015 at 9:56 am by Laura Guthrie

From the CEO’s Desk

Dear Readers, Dr David Serisier, Chair of Lung Foundation Australia, died suddenly and unexpectedly on 30 May 2015. David was 45 years old. Lung Foundation Australia, the respiratory community and patients have lost a respected clinician and leader, a researcher of international standing, a mentor, a supportive colleague, a trusted doctor, and a friend. David’s…

August 1, 2015 at 10:19 am by Laura Guthrie

Diary Dates 2015

Lung Health Patient Education Day, Brisbane 2 September Lung Health Patient Education Day, Sydney 17 September Lung Health Patient Education Day, Adelaide 14 October Australian Rare Lung Disease Short Course, Sydney 16–17 October Just One Breath 2015 Annual Gala Dinner, Sydney 17 October Lung Health Patient Education Day, Melbourne 23 October Lung Health Patient Education…

August 1, 2015 at 10:29 am by Laura Guthrie

Staff News

The last few months have been a time of great change at Lung Foundation Australia with a number of new recruitments and two long-standing members of staff moving on to new pastures. Lung Foundation Australia extends a warm welcome to the following staff: Ashleigh Ricardo, Information and Support Centre Admin Support Officer. Ashleigh’s appointment complements the…

August 1, 2015 at 10:36 am by Laura Guthrie

Farewell to Lung Foundation Friends

Geoff Bicknell 16 April 1928 – 3 June 2015 It is with regret that Lung Foundation Australia advises of the recent passing of Geoff Bicknell, former leader of the SWILS Patient Support Group in Bunbury, Western Australia. Geoff, who had COPD, was generous with his time, both in supporting others with respiratory conditions and advocating…

August 1, 2015 at 10:40 am by Laura Guthrie

Lung Cancer Network Australia Update

Kerrie Callaghan, Project Manager, Lung Cancer, Lung Foundation Australia Hold a Shine a Light on Lung Cancer awareness event this November November is Lung Cancer Awareness Month and we are calling on you to help us shine a light on the inequalities in lung cancer by holding your own lung cancer awareness event. Shine a…

August 1, 2015 at 10:55 am by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia Thanks to the generous contributions by more than 600 patients with IPF now participating from every State and Territory, the Australian IPF Registry is being recognised as a world leader. Representatives of the Australian Registry recently attended an international meeting of IPF registries. The Australian Registry…

August 1, 2015 at 11:29 am by Laura Guthrie

New Patient Support Group

1ng Foundation Australia is pleased to announce the establishment of a new Patient Support Group in Mount Druitt, NSW. “Enuff, Huff ‘N’ Puff” is a Support Group for people with any respiratory condition and welcomes both patients and their carers. The Group meets at 10.00am on the first Monday of every month at Whalan Community…

August 1, 2015 at 11:46 am by Laura Guthrie

Walking the Bridge to Good Health with Lungs in Action

Emma Gainer, Program Manager, Pulmonary Rehabilitation and Lungs in Action, Lung Foundation Australia When Joy, Secretary of the LungNet Southern Highlands Patient Support Group located in Bowral, contacted Lung Foundation Australia seeking support to start a Lungs in Action program in 2013, she didn’t imagine that it would become a successful program only a couple…

August 1, 2015 at 11:53 am by Laura Guthrie

Your Opportunity to Advocate for Pulmonary Rehabilitation – We Need Your Help

Chronic lung diseases such as chronic obstructive pulmonary disease (COPD), bronchiectasis and interstitial lung disease share a common limiting symptom – breathlessness. When breathlessness is not well managed, daily tasks like walking to the shops and even showering, become difficult and social isolation is a risk as outings become restricted. Pharmacological interventions have been shown…

August 1, 2015 at 2:22 pm by Laura Guthrie

New Patient Program: C.O.P.E –COPD.Online.Patient.Education

C.O.P.E – COPD Online Patient Education is a new, free web-based resource for patients (and their carers) that enables patients to complete the educational component of pulmonary rehabilitation from the comfort of their own home. Pulmonary rehabilitation programs generally consist of eight weeks of exercise and education. These sessions are evidence-based and designed specifically for…

August 1, 2015 at 2:31 pm by Laura Guthrie

Just One Breath Gala Dinner

Save the date for Lung Foundation Australia’s Just One Breath Gala Dinner to be held at the Opera Point Marquee in Sydney on 17 October. Experience views of the Sydney Harbour from the comfort of the Opera Point Marquee Enjoy a meal, selected from a Spring Menu designed by Aria’s two-hatted Matt Moran Take part…

August 1, 2015 at 2:36 pm by Laura Guthrie

Save the Date for World COPD Day!

It’s that time of the year again when we ask you to save the date for World COPD Day. This year it falls on Wednesday 18 November. Once again, we are encouraging patients and health professionals to get involved by holding your own activity to raise awareness about the symptoms, risk factors and treatment for…

August 1, 2015 at 2:42 pm by Laura Guthrie

Lung Cancer Support Nurse Appointed

Lung Foundation Australia is thrilled to announce the appointment of Claire Mulvihill to the newly created position of Lung Cancer Support Nurse. This position is made possible through a successful application under the 2015 Supporting People with Cancer Grant, funded by Cancer Australia. Claire will be available to provide telephone support and information to patients and…

August 20, 2015 at 11:44 am by Laura Guthrie

Australian Rare Lung Disease Patient Education Event in Sydney – 17 October 2015

1 Lung Foundation Australia is pleased to advise we will be conducting a patient education event in conjunction with the 2nd Biennial Australian Rare Lung Disease Short Course on 16 – 17 October. The half day patient education event will be held at Rydges Sydney Central on Saturday 17 October 2015. This patient focused event…

August 20, 2015 at 2:58 pm by Laura Guthrie

Carbon Dioxide Retention in Patients with Chronic Obstructive Pulmonary Disease

Dr Claude Farah, Respiratory and Sleep Physician, Macquarie University Hospital Clinic, NSW What is carbon dioxide? Carbon dioxide (CO2) is a gas in the air that makes up about 0.03% of the earth’s atmosphere. CO2 is also a “waste gas” and a by-product of the body’s metabolism (biochemical processes occurring in cells and which are…

October 8, 2015 at 9:00 am by Laura Guthrie

From the CEO’s Desk

Dear Readers, I am sure I don’t need to remind you about the significant benefits of pulmonary rehabilitation and ongoing exercise maintenance for those with COPD and other chronic lung diseases. We have been writing about and advocating for wider access to these important programs for many years. In October, there will be an opportunity…

October 8, 2015 at 9:01 am by Laura Guthrie

Diary Dates 2015

Lung Health Patient Education Day, Adelaide 14 October Australian Rare Lung Disease Short Course, Sydney 16 – 17 October Just One Breath 2015 Annual Gala Dinner, Sydney 17 October Lung Health Patient Education Day, Melbourne 23 October Lung Health Patient Education Day, Campbell Town, Tasmania 24 October Lung Health Awareness Month November Lung Cancer Awareness…

October 8, 2015 at 9:02 am by Laura Guthrie

Farewell to Lung Foundation Friends

Dean Sherry It is with great sadness that Lung Foundation Australia advises of the passing of Adelaide COPD Patient Advocate Group member Dean Sherry in July. Dean enjoyed his volunteer work and engagement with the Lung Foundation and was excited about his involvement in the COPD advocacy and awareness campaigns. Dean was a fantastic contributor…

October 8, 2015 at 9:03 am by Laura Guthrie

Staff News

Our Lung Foundation Australia team continues to grow. Since our last edition, we have welcomed three new staff members to the team, Kirsten Phillips, Mary Bishop and Dan Jackson. Kirsten has been appointed as Director, COPD National Program replacing Liz Harper who left in August. Kirsten’s background as an occupational therapist ensures she has a…

October 8, 2015 at 9:04 am by Laura Guthrie

It’s Not Too Late to Shine your Light on Lung Cancer this November

Kerrie Callaghan, Project Manager, Lung Cancer, Lung Foundation Australia November is International Lung Cancer Awareness Month and we encourage you to host a Shine a Light on lung cancer awareness event within your community. This year we are shining a light on the inequalities in lung cancer research funding. In Australia, only 5% of tumour…

October 8, 2015 at 9:05 am by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

Sacha Macansh, Project Manager, Australian IPF Registry, Lung Foundation Australia New Registry research on gastroesophageal reflux disease in patients with IPF will be presented at the Australian Rare Lung Diseases Short Course in Sydney on 16 – 17 October. Gastroesophageal reflux has been observed in many people with IPF and may be an important factor…

October 8, 2015 at 9:06 am by Laura Guthrie

Help us Raise Awareness for World COPD Day!

Diane Barton, Marketing & Communications Coordinator, COPD National Program, Lung Foundation Australia This World COPD Day (Wednesday 18 November) we are encouraging all Australians over the age of 35 to take breathlessness seriously and get a lung health check. Contrary to what many people think, breathlessness is not a normal part of ageing. Feeling out…

October 8, 2015 at 9:07 am by Laura Guthrie

NPS MedicineWise Organises ‘Be Medicinewise Week’

The fifth annual Be Medicinewise Week will be held on 12 – 18 October to promote the safe and wise use of medicines. “One size doesn’t fit all when it comes to your medicines, and people will use medicines differently at various times in their lives,” says Dr Andrew Boyden, GP and Clinical Adviser at…

October 8, 2015 at 9:08 am by Laura Guthrie

Lungs in Action: An Instructor’s Perspective

Emma Gainer, Program Manager, Pulmonary Rehabilitation and Lungs in Action, Lung Foundation Australia In the next two editions of LungNet News, the Lungs in Action update will focus on the perspective of an instructor and a participant. In this edition, participant Allan Roue will be asking instructor Jane Braund the hard questions. Stay tuned for…

October 8, 2015 at 9:09 am by Laura Guthrie

Helping Australia Embrace Its Lung Health

With Lung Health Awareness Month (November) just around the corner, Lung Foundation Australia encourages everyone to take Just One Breath and celebrate the gift of breathing. Lung health is vital and often overlooked by many Australians. We’re used to thinking about our heart, skin and breast health but our lungs are equally important. In fact,…

October 8, 2015 at 9:10 am by Laura Guthrie

Christmas is a Time for Family and Hope

Lung Foundation Australia works all year round to develop and deliver our vital services for both our patient and healthcare communities. Queensland Fire and Emergency Service Auxiliary fire fighter and father of seven, Brett Torcetti knows just how essential these services are after being diagnosed with lung cancer. “I had a chest infection, or so…

October 8, 2015 at 9:11 am by Laura Guthrie

QUIT4october and ‘QUIT4Life’

QUIT4october is a month-long initiative dedicated to helping people to quit smoking with the support of their health professional. The QUIT4october campaign is being piloted by Lung Foundation Australia in four areas across Australia including three regional areas: Ballarat (Victoria), Toowoomba (Queensland), Dubbo and Ryde (New South Wales). The campaign is based on evidence that…

October 8, 2015 at 9:12 am by Laura Guthrie

Pulmonary Hypertension Western Australia (PHWA)

PHWA is an organisation that offers support, advocacy, referral, information and educational resources about pulmonary hypertension (PH) to patients, carers, family and health professionals in WA. Some of the services provided include support group meetings, guest speakers, patient resources, education and a quarterly magazine. PHWA is a non-profit charitable organisation focused on helping those with PH…

October 8, 2015 at 9:21 am by Laura Guthrie

IPF Peer Support Program for Patients and Carers Living with IPF

Lung Foundation Australia has recently been trialling an IPF Patient Peer Support Program comprising a Facebook Group and a telephone Peer Support Program. The Peer Support Program provides an opportunity for patients and carers living with Idiopathic Pulmonary Fibrosis (IPF) to connect with other people who are living with the same disease in order to…

October 8, 2015 at 9:28 am by Laura Guthrie

Bridge to Brisbane Success

Congratulations to Ross Lloyd, double lung transplant recipient and Chairman of our COPD Patient Advocate Group (CPAG), who ran the Bridge to Brisbane (B2B) on Sunday 30 August. Ross has run the B2B before but this year was extra special because he had the opportunity to run with his donor’s daughter, her husband and their…

October 8, 2015 at 9:31 am by Laura Guthrie

New Trial for Lung Cancer Opens in Australia

The Australasian Lung Cancer Trials Group (ALTG), working with the National Health and Medical Research Council Clinical Trials Centre (NHMRC CTC) and research groups in other countries has launched the BR.31 trial in Australia. BR.31 is a clinical research study that is testing MEDI4736, a new type of drug treatment for non-small cell lung cancer…

October 8, 2015 at 9:32 am by Laura Guthrie

Welcome to the February 2016 edition of LungNet News

Welcome to the February 2016 edition of LungNet News and Happy New Year to all our readers. This year, we are introducing a theme to each newsletter and the focus of this issue is self-management. We draw your attention to the articles on managing daily activities with shortness of breath below; the importance of the…

February 18, 2016 at 12:12 pm by Laura Guthrie

Managing day-to-day activities with shortness of breath

Corinne French, Program Manager – Pulmonary Rehabilitation, Lung Foundation Australia Our body needs oxygen to function. The more we move, and the faster we move, the more oxygen our body needs. Our body’s response to this increased demand is to increase our breathing and heart rate. If our lungs are affected by lung disease, any…

February 18, 2016 at 12:36 pm by Laura Guthrie

From the CEO’s desk

Dear Readers, On behalf of the Board and staff of Lung Foundation Australia, I wish you all a Happy New Year. I would also like to give a vote of thanks to the Lung Foundation community for their generosity last year. You will read in these pages that our Christmas Appeal and our Shine a…

February 18, 2016 at 12:55 pm by Laura Guthrie

Lung Foundation Australia patient survey offers insight into living with a lung disease

In August 2015, a patient survey was included with LungNet News and we thank all of you who responded. We received more than 1,400 responses and the analysis provided the Lung Foundation with some very rich data. It was interesting to note from the survey that of those patients with COPD or asthma, almost 70…

February 18, 2016 at 2:21 pm by Laura Guthrie

Staff News

In November, we bade farewell to Project Manager, Nigel McPaul who has moved on to an exciting new role with Alzheimers Australia in Canberra. We wish him all the best in his new job. In February, Nigel’s replacement, Sonia Boyd took up her position as Program Manager – Rare Lung Disease National Program. Sonia joins the…

February 18, 2016 at 2:32 pm by Laura Guthrie

Farewell to Lung Foundation friends

Ross William Lloyd Lung Foundation Australia is deeply saddened by the sudden passing of Ross Lloyd on 26 December 2015, aged 66. Ross was diagnosed with COPD in March 2010 which was followed by a subsequent diagnosis of pulmonary fibrosis. His health quickly deteriorated but, in May 2013, he received the gift of life – a…

February 18, 2016 at 2:34 pm by Laura Guthrie

A focus on fundraising

We extend thanks to our wonderful supporters who gave generously during our Christmas Appeal enabling us to meet our fundraising target and raise almost $22,000, which will go towards the work of our wonderful Information and Support Centre. We also thank those of you who helped raise funds via your own organised events during 2015.…

February 18, 2016 at 2:38 pm by Laura Guthrie

World COPD Day – 2015 our biggest year yet!

Thank you to everyone who participated in, or raised funds for World COPD Day. Your efforts helped raise awareness of COPD and the importance of checking in with your lungs. Our theme was breathlessness – recognising that feeling out of breath is a symptom that should not be ignored. 2015 was our biggest year so…

February 18, 2016 at 2:41 pm by Laura Guthrie

Lung Cancer Network Australia – Shine a Light on lung cancer

Lung Foundation Australia thanks our generous community of lung cancer patients, families, supporters, nurses, clinicians and sponsors who hosted Shine a Light on lung cancer awareness events during November. There were more than 30 diverse events held around the country, double the number in 2014 and they included information stands in hospitals, community walks and…

February 18, 2016 at 2:44 pm by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry

A group of internationally recognised physicians and researchers have received funding to use data from the Australian IPF Registry to investigate the potential relationships between IPF and workplace or environmental exposures. The funding is the second National Health and Medical Research Council (NHMRC) grant involving the Registry. The NHRMC is the pre-eminent source of research…

February 18, 2016 at 2:48 pm by Laura Guthrie

Research snapshot: new approach to management of COPD

Lung Foundation Australia believes research is one of the most effective ways to improve the prevention, detection, treatment and management of lung disease. We have provided almost $1 million in the past five years to support COPD research, which is only part of our overall research investment. In each issue we will update you on…

February 18, 2016 at 2:54 pm by Laura Guthrie

Lungs in Action: A patient’s perspective

Emma Gainer, Program Manager, Pulmonary Rehabilitation and Lungs in Action, Lung Foundation Australia After hearing about Jane Braund’s experience as a Lungs in Action instructor in the last edition of LungNet News, we now hear from Allan Roue, who has been attending Lungs in Action for the last 18 months. Participant name: Allan Roue Lungs…

February 18, 2016 at 2:58 pm by Laura Guthrie

Diary Dates 2016

11 March: Dubbo Patient Seminar 11 April: Sunnybank Patient Seminar 20 April: Canberra Patient Seminar 26 May: Mandurah Patient Seminar 27 May: Perth Patient Seminar 26 August: Corporate Cycling Challenge, Brisbane 18-20 August: Australian Lung Cancer Conference, Melbourne 22 October: Just One Breath Gala Dinner, Sydney November: Lung Health Awareness Month 1-30 November: Community walk,…

February 18, 2016 at 3:15 pm by Laura Guthrie

Lung Foundation Australia launches Australian Bronchiectasis Registry

In January 2016, the Australian Non-Cystic Fibrosis Bronchiectasis Registry (ABR) received approval to start recruitment at Concord Repatriation General Hospital in Sydney. This is the first of 11 Australian centres taking part in the first stage of this national research project into bronchiectasis, a relatively common condition with no known cure. Participation at this stage…

February 18, 2016 at 3:34 pm by Laura Guthrie

NTM: A little known lung disease

Merv Couper, NTM Patient, Woodvale, WA  Nontuberculous mycobacterium (NTM) can be a serious chronic lung disease that can make patients very ill and damage their lungs. Dr Justin Waring, a respiratory specialist treating NTM patients in Perth, explains that the bacteria causing NTM lung infection is usually slow growing and the condition is difficult to…

February 18, 2016 at 3:42 pm by Laura Guthrie

Western Australia Lung Leaders Network established

Jenni Ibrahim, Coordinator, L I F E; Convenor, WA Lung Leaders Network In July 2015, the Lung Information & Friendship for Everyone (L I F E) support group facilitated a meeting of the Western Australia (WA) respiratory support group leaders who came together to share experiences and ideas of running a group. There are currently…

February 18, 2016 at 3:59 pm by Laura Guthrie

Australian study to understand the experience of lung cancer patients

How are you? It’s a simple question but for lung cancer patients it could be just enough to start a very important conversation about quality of life. In a study published in the Journal of Clinical Oncology including 2,442 patients over 11 years, Professor Jeff A. Sloan reported that newly-diagnosed lung cancer patients who rated…

February 18, 2016 at 4:04 pm by Laura Guthrie

COPD services in pharmacies

Peter Waterman, Communications Specialist, The Pharmacy Guild of Australia, Canberra The ability to self-manage COPD is an integral step in slowing the progress of the disease and in helping patients to enjoy a better lifestyle. It is believed that many COPD patients would benefit from the early intervention that comes from following self-management plans, and…

February 18, 2016 at 4:06 pm by Laura Guthrie

New COPD patient videos to improve inhaler device technique

Judy Powell, Project Manager – COPD Education and Training, Lung Foundation Australia Have you had your inhaler device (puffer) technique checked lately? Research indicates 90 per cent of people do not use their puffer correctly, which means you might not be getting the right dose of medicine each time you use your device. Lung Foundation…

February 18, 2016 at 4:09 pm by Laura Guthrie

National Volunteer Week 9-15 May

National Volunteer Week (NVW) is an annual celebration to acknowledge the generous contribution of our nation’s volunteers and this year, NVW is taking place from 9-15 May. Lung Foundation Australia takes this opportunity to once again acknowledge and thank the hundreds of volunteers who generously donate their time to help us achieve our goal to make…

May 1, 2016 at 9:56 am by Laura Guthrie

Sleep apnoea and depression

A good night’s sleep can benefit our health in a number of ways including improving our concentration, alertness, memory and physical performance. Sleep reduces stress, strengthens the immune system and helps our bodies to heal. It is not only important that we get the right amount of sleep, which for the average adult is seven to…

May 1, 2016 at 11:25 am by Laura Guthrie

Home oxygen therapy equipment: Simple winter safety reminders

Although not all of us will worry about snow and ice during winter in Australia, most of us will feel the chill and the need to rug up to stay warm. With the winter weather soon upon us, make sure you follow some general safety precautions when using your home oxygen therapy equipment. Oxygen makes…

May 1, 2016 at 11:34 am by Laura Guthrie

Experts join forces to clear Australia’s air

Leading Australian experts have joined forces to establish an alliance including academics, doctors, lawyers and the Lung Foundation to tackle the unseen and often poorly understood impact of air pollution on health in Australia. The first National Air Quality and Health meeting took place in February in Melbourne and highlighted the challenges in effectively communicating…

May 1, 2016 at 12:27 pm by Laura Guthrie

My gift of life

Marion Walsham, double lung transplant recipient The loss of her father and two brothers to idiopathic pulmonary fibrosis (IPF), her own diagnosis of IPF and a double lung transplant has led Marion Walsham from Banora Point in NSW on a journey of gratitude, the desire to help others and to raise awareness of the disease.…

May 1, 2016 at 12:33 pm by Laura Guthrie

S.W.I.T.C.H. – Support With Integrity Thought Care & Humility Support Group 20 year anniversary

1Lung Foundation Australia congratulates the S.W.I.T.C.H. Support Group in Bracken Ridge, Brisbane which is celebrating its 20th anniversary in May. Since the first meeting at the Bracken Ridge Uniting Church on Friday 24 May 1996, the group has been a valuable source of education, friendship and support to respiratory patients in the area. S.W.I.T.C.H. is…

May 1, 2016 at 12:37 pm by Laura Guthrie

Lung Cancer Warriors Cookbook

My mum, Frances Schembri, a lifelong never-smoker was diagnosed with lung cancer at the age of 52. In the past, Mum had helped with a cookbook fundraiser so we decided we would create The Lung Cancer Warriors’ Cookbook®, a collection of recipes from lung cancer warriors to help fundraise and raise awareness of lung cancer.…

May 1, 2016 at 12:38 pm by Laura Guthrie

From the CEO’s desk: New research funding announced by Lung Foundation Australia

Dear Readers, I am writing my CEO message from Perth where I am attending the Thoracic Society of Australia and New Zealand (TSANZ) annual conference. The TSANZ conference is always an excellent opportunity for the Lung Foundation to reconnect with the clinical and research community that makes such a difference to the lives of those…

May 1, 2016 at 12:44 pm by Laura Guthrie

Recognising a lifetime of achievement

Lung Foundation Australia has proudly welcomed four new members into our lifetime achievement award club. All four recipients have made significant contributions to helping people living with lung disease across Australia. COPD National Program member and former Lung Foundation Australia Board Member, David Hayne, joined the organisation as a consumer representative for the COPD Coordinating…

May 1, 2016 at 12:50 pm by Laura Guthrie

Patient Seminars wrap

In March, Lung Foundation Australia held the inaugural Dubbo “Better Living with Your Lung Disease” Patient Seminar as part of our well-established national program of Patient Seminars. More than 50 attendees listened to the presentations which included helpful tips and alternative ways of making everyday tasks easier for people living with lung disease; lung function…

May 1, 2016 at 12:52 pm by Laura Guthrie

Calling for COPD volunteers!

Do you have COPD or know someone who does? Lung Foundation Australia is looking for people to become involved in our COPD National Program by sharing their story on our website, taking part in videos and news stories and volunteering for committees. If you would like to get involved, please phone 1800 654 301 or…

May 1, 2016 at 12:53 pm by Laura Guthrie

Lung Foundation Australia launches Corporate Cycle Challenge in Brisbane

Lung Foundation Australia’s fundraising events aim to increase community involvement, raise awareness of the importance of our lung health and raise vital funds to support the work we do. Just One Breath Cycle Challenge – Brisbane, 26 August The Just One Breath Cycle Challenge is a new event set up for teams to challenge themselves…

May 1, 2016 at 2:09 pm by Laura Guthrie

Australian Bronchiectasis Registry: Registration gets under way in NSW

The Australian Non-Cystic Fibrosis Bronchiectasis Registry (ABR) has confirmed its first 60 patient registrations at Sydney’s Concord Repatriation General Hospital, the first of 11 centres participating in this national research project. Investigators now expect all the participating centres will receive their approvals in the coming months. Patients, or parents of children with bronchiectasis, who choose…

May 1, 2016 at 2:18 pm by Laura Guthrie

Lung Cancer Network Australia update

Changing the Face of Lung Cancer social media campaign – a Lung Foundation Australia first! Lung Foundation Australia’s Changing the Face of Lung Cancer social media campaign was launched on 4 February as part of World Cancer Day. The campaign featured two powerful patient videos which were viewed by more than 170,000 people. We sincerely…

May 1, 2016 at 2:26 pm by Laura Guthrie

Winter is coming: Make sure you get your flu shot

In a severe year, around 20 per cent of Australians can become infected with influenza and even healthy, young adults may take several weeks to fully recover. Getting vaccinated is the single, most effective way to minimise the risk of contracting the disease. The Influenza Specialist Group (ISG) has listed some common myths and misconceptions…

May 1, 2016 at 3:20 pm by Laura Guthrie

NAIDOC Week 2016

National Aborigines and Islanders Day Observance Committee (NAIDOC) Week 2016 runs from 3-10 July and is an opportunity for all Australians to come together to celebrate the history, culture and achievements of Aboriginal and Torres Strait Islander people. The Lung Foundation recognises the burden of chronic lung disease in Aboriginal and Torres Strait Islander people, particularly in rural…

May 1, 2016 at 3:23 pm by Laura Guthrie

Lung Cancer Support Nurse one year on

You may remember reading about the appointment of Claire Mulvihill to the newly created position of Lung Cancer Support Nurse in the August edition of LungNet News last year. It has now been one year since Claire’s appointment and we thought it was timely to share the story of one of the patients Claire has…

July 27, 2016 at 3:19 pm by Laura Guthrie

New and updated resources

Home Oxygen Therapy This brochure provides brief information for those recently prescribed home oxygen therapy. Your Pathway Through Lung Cancer Care ‘Your Pathway Through Lung Cancer Care’ shows patients what to expect if they have been diagnosed with lung cancer. It helps them to understand more about lung cancer and the evidence-based clinical pathways throughout…

July 27, 2016 at 3:20 pm by Laura Guthrie

Join us in celebrating Lung Health Awareness Month

November will be a particularly busy month here at Lung Foundation Australia with Lung Health Awareness Month and International Lung Cancer Awareness Month – and we want you to be involved. As you will have seen throughout this newsletter, there are many events happening during the month, from Love Your Lungs Community Walks around the…

July 27, 2016 at 3:21 pm by Laura Guthrie

A focus on fundraising

Our recent appeal letter stressed the urgent need for funding for research into lung disease. Research is one of the most effective ways to improve prevention, detection, treatment and management of lung disease and it requires vast resources. We cannot do this without the help of the community. For those who have already donated, a…

July 27, 2016 at 3:22 pm by Laura Guthrie

Better Living With Your Lung Disease Patient Seminars

In late May, Lung Foundation Australia held the annual Perth Better Living With Your Lung Disease Patient Seminar. The seminar proved to be extremely popular, with 130 people attending, more than double the number of attendees compared to last year. The presenters delivered valuable information on cough, sputum and airway infection as well as outlining…

July 27, 2016 at 3:35 pm by Laura Guthrie

Lung Foundation Australia to support people as they QUIT4october

Lung Foundation Australia will be there for people as they take the challenge to quit smoking for a month in October. Now in its second year, QUIT4october is a month long quit smoking campaign that encourages people with the support of their health professional, friends and family to stop the cigarettes. The campaign is based…

July 27, 2016 at 3:39 pm by Laura Guthrie

Lung Cancer Network Australia update

Melbourne Better Living with Lung Cancer Consumer Forum – Wednesday 17 August Lung Cancer Network Australia invites patients, carers and family members to attend a free interactive consumer forum as part of the upcoming Australian Lung Cancer Conference in Melbourne on Wednesday 17 August. Forum topics include managing ‘scanxiety’ and other common psychosocial challenges of…

July 27, 2016 at 3:40 pm by Laura Guthrie

Staff news

2016 has been a year of big change in the Information and Support Centre with the retirement of Jenny Hose in June. Jenny started work in the Information and Support Centre in June 2006, and has been an invaluable asset to the Lung Foundation over the last 10 years. Her knowledge, dedication, ability to think…

July 27, 2016 at 3:43 pm by Laura Guthrie

Indigenous Lung Health Checklist is now available

Indigenous Australians are almost twice as likely to die from a lung-related condition than non-Indigenous Australians. With the mortality rate for respiratory disease in Indigenous Australians 1.9 times that of non-Indigenous Australians, it is more important than ever to try and address the endemic challenge of helping the Indigenous community to breathe well. That’s why…

July 27, 2016 at 3:45 pm by Laura Guthrie

Have the CHAT about your COPD symptoms

A flare-up of symptoms for people with COPD can be as severe as a heart attack. That’s why Lung Foundation Australia is running our ‘Have the CHAT’ campaign again this winter to encourage people with COPD to get to their doctor quickly if they notice a change in symptoms. The ‘CHAT’ acronym highlights common symptoms…

July 27, 2016 at 3:45 pm by Laura Guthrie

COPD Patient Advocate Group (CPAG) update

Ian Venamore, Chair, CPAG I am privileged to contribute to LungNet News for the first time as Chair of the COPD Patient Advocate Group (CPAG). For those who don’t know me, I am a COPD patient and was diagnosed 12 years ago, completed pulmonary rehabilitation four years ago and have worked as a volunteer with…

July 28, 2016 at 9:06 am by Laura Guthrie

Congratulations to the 2016 Research Award winners

The IPF PhD scholarships are only two of a number of Research Awards which Lung Foundation Australia has awarded this year. The table (right) shows the different awards available, the 2016 winners and the value of the award. Dr Christian Osadnik receiving the Lung Foundation Australia/Boehringer Ingelheim COPD Research Fellowship 2016/2017.

July 28, 2016 at 9:06 am by Laura Guthrie

Lung Foundation Australia announces two new IPF PhD scholarships

Lung Foundation Australia has announced the winners of two new PhD scholarships worth $180,000 over three years to increase our understanding of a rare and devastating disease called Idiopathic Pulmonary Fibrosis (IPF). Through the generous support of the Wilson family, together with the Pulmonary Fibrosis Consortium, Lung Foundation Australia is offering seven leveraged PhD scholarships…

July 28, 2016 at 9:26 am by Laura Guthrie

Membership changes: New ‘Love Your Lungs’ Club to connect supporters

Next year, Lung Foundation Australia will launch our ‘Love Your Lungs’ Club, a new community which will replace our existing Supporter Membership program. The new club will cost $30 per year and will offer access to a variety of benefits for supporters including discounted entry to Patient Seminars, discounts on patient resources (where a cost…

July 28, 2016 at 9:27 am by Laura Guthrie

‘Spring’ back into action

Emma Gainer, Program Manager – Lungs in Action, Lung Foundation Australia  Did you find it hard to get out and about this winter? If you found yourself not exercising or not exercising as often, now is the time to ‘spring’ back into it. Exercise is an important part of managing a chronic lung condition and…

July 28, 2016 at 9:29 am by Laura Guthrie

New Lung Cancer Multidisciplinary Team Directory launched

Lung Foundation Australia has developed a comprehensive directory of dedicated Lung Cancer Multidisciplinary Teams (MDT), with funding from the Cancer Australia 2015 Supporting People with Cancer Grant. The MDT Directory provides a platform to improve early access and treatment for patients who present to their GP or clinician with symptoms of lung cancer that warrant…

July 28, 2016 at 9:57 am by Laura Guthrie

From the CEO’s desk

Dear Readers, I had the pleasure of meeting Olympic legend Cathy Freeman in June. Cathy has partnered with Lung Foundation Australia to encourage the nation to start thinking about their lung health. Cathy is our new Just One Breath national ambassador, joining our previous champions who include Archie Roach and Christine Anu. She is passionate…

July 28, 2016 at 9:58 am by Laura Guthrie

Save the date for World COPD Day!

It’s that time of the year again when we ask you to save the date for World COPD Day which falls on Wednesday 16 November this year. Once again we are encouraging members of the community to get involved by holding your own activity to raise awareness about the symptoms of COPD and encourage people…

July 28, 2016 at 9:59 am by Laura Guthrie

Allergies and lung disease

Ainsley Ringma, Lung Care Nurse, Lung Foundation Australia You may notice as the days get longer and warmer that you begin to have a runny nose, sneeze more and even your eyes may be itchy or watery. Welcome to spring, which for some people means allergy time. Allergies like allergic rhinitis (hayfever) can occur at…

July 28, 2016 at 9:59 am by Laura Guthrie

Calling for online support volunteers

In early 2017, we hope to launch an online forum to extend the reach of our patient support. The forum will be used to connect those affected by lung disease to an online support system accessible by all, regardless of age, health, or location. We are looking for volunteers, either patients or carers to join…

July 28, 2016 at 10:43 am by Laura Guthrie

Diary Dates

18–20 August Australian Lung Cancer Conference, Melbourne 26 August Just One Breath Cycle Challenge, Brisbane 31 August Brisbane North (Chermside) Patient Seminar 14 September Camden (NSW) Patient Seminar 15 September Sydney Patient Seminar 28 September Adelaide Patient Seminar 8 October Campbell Town (Tasmania) Patient Seminar 13 October Melbourne Patient Seminar 22 October Just One Breath…

August 1, 2016 at 12:57 pm by Laura Guthrie

Farewell to Lung Foundation friends

Marlene Kennedy (pictured) The Albury/Wodonga Murray Wheezers Respiratory Support Group pays tribute to their late President, Marlene Kennedy, who passed away on 25 April 2016. Marlene was a founding member and President of the group which was established in 2005. Marlene will be remembered for her continuing leadership of the Murray Wheezers even with her…

August 1, 2016 at 1:00 pm by Laura Guthrie

Lung Foundation Australia’s new ‘Love Your Lungs’ club

On 1 September, Lung Foundation Australia officially launched our new membership community, the ‘Love Your Lungs’ club which replaced our existing Supporter Membership. The ‘Love Your Lungs’ club is for everyone – patients, families, friends and the general community – and is a great way to show people with lung disease how much you care.…

October 19, 2016 at 12:31 pm by Laura Guthrie

Don’t let your breathing troubles stop you enjoying a holiday

Ainsley Ringma, Lung Care Nurse, Lung Foundation Australia Whether it’s a weekend away at the beach, a cruise or a flight, there is no reason people with a lung condition can’t enjoy a holiday. It all comes down to having a plan and preparing well ahead of time. Here are some helpful hints to enable you…

October 19, 2016 at 12:43 pm by Laura Guthrie

From the CEO’s desk

This August, I was privileged to witness the presentation of the inaugural Lung Foundation Australia/Deep Manchanda Post-Doctoral Fellowship Award in lung cancer. The presentation was made at Lung Foundation Australia’s 6th Australian Lung Cancer Conference by Foundation Chair, Professor Christine Jenkins. The recipient of the Fellowship, Dr Atiqur Rahman, will join Professor Philip Hansbro at…

October 19, 2016 at 4:05 pm by Laura Guthrie

Patient forum: calling for online support volunteers

In early 2017, we hope to launch an online forum to extend the reach of our patient support. The forum will connect those affected by lung disease to an online support system accessible by all, regardless of age, health or location. We are looking for volunteers who have basic internet skills who would like to…

October 19, 2016 at 4:11 pm by Laura Guthrie

Staff news

In August, we welcomed Cathy Sowden to the Lung Foundation team. Based in Sydney, Cathy’s role is focused on developing our bequests program and working on the new strategic research initiative Lungs for Life, a collaboration between Lung Foundation Australia and the Thoracic Society of Australia and New Zealand. Also in August, we bade farewell…

October 19, 2016 at 4:25 pm by Laura Guthrie

Music for your lungs

Emma Gainer, Program Manager – Lungs in Action, Lung Foundation Australia The Lungs in Action group at the University of Canberra has introduced playing the harmonica as an extra exercise activity. Launched by Lungs in Action instructors Julie Cooke and Lennon Wicks, UC Harmonicats spend an hour each week playing tunes on the harmonica in…

October 19, 2016 at 4:52 pm by Laura Guthrie

New and updated resources

Fitness to Fly Factsheet This resource provides lots of useful hints and tips on what to consider before booking a plane ticket. A copy can be downloaded from http://lungfoundation.com.au/patient-support/living-with-a-lung-condition/fitness-to-fly/. Sarcoidosis Educational Brochure/Factsheet This resource has recently been reviewed and revised and the factsheet can be downloaded at http://lungfoundation.com.au/patient-support/other-lung-conditions/sarcoidosis. New Pulmonary Rehabilitation Educational Brochure Originally published…

October 20, 2016 at 4:25 pm by Laura Guthrie

A comic to explain COPD!

COPD is a complex chronic disease and it is essential that people have the right information and understand how to best manage COPD. We are pleased to announce a new comic book, designed to explain COPD to children, adults and families. It is based on the real-life story of Andrew and Hannah whose grandmother with…

October 20, 2016 at 4:28 pm by Laura Guthrie

Australian Bronchiectasis Registry enrolments increasing rapidly

The Australian Bronchiectasis Registry (ABR) has now enrolled over 250 adults and younger persons since registration started in early 2016. Patients with bronchiectasis from 13 centres across Australia are now participating in this first of its kind national research study to contribute to a better understanding of (non-cystic fibrosis) bronchiectasis. This allows them to play…

October 20, 2016 at 4:40 pm by Laura Guthrie

COPD Patient Advocate Group (CPAG) update

Since I last wrote in the August edition of LungNet News, the YMCA gym where I exercise regularly was faced with withdrawal of support for the ‘HeartMoves’ class by the Heart Foundation. This class which also doubles as a Lungs in Action program provides structured and monitored exercise to a diverse group of about eight…

October 24, 2016 at 10:45 am by Laura Guthrie

Lung Cancer Network Australia update

It’s not too late to host a Shine a Light event and raise funds for lung cancer research November is International Lung Cancer Awareness Month and we’d love you to host a Shine a Light on lung cancer awareness event and help us raise much needed funds for lung cancer research. Less than five cents…

October 24, 2016 at 11:20 am by Laura Guthrie

A focus on fundraising

Just One Breath Cycle Challenge In August, cycling enthusiasts came together to help raise awareness and much needed funds to support lung research at Lung Foundation Australia’s inaugural Just One Breath Cycle Challenge. About 20 teams, making 100 riders, took to the track at Lakeside International Raceway in Brisbane’s north to peddle the vital message…

October 24, 2016 at 11:32 am by Laura Guthrie

Take a deep breath in Lung Health Awareness Month

Lung Foundation Australia is encouraging people to take a deep breath and think about their lungs during November. This year’s Lung Health Awareness Month will have lots of opportunities for people to help promote the importance of not ignoring symptoms and acting early on the possible signs of lung disease. A national survey showed that…

October 24, 2016 at 11:35 am by Laura Guthrie

Patient Forum at 6th Australian Lung Cancer Conference provides a renewed optimism

Lung Foundation Australia hosted the 6th Australian Lung Cancer Conference in Melbourne from 18 – 20 August which brought together about 400 delegates nationally and internationally. As part of the conference, a Better Living with Lung Cancer Consumer Forum was held with 40 patients and carers travelling from across Australia to attend. The feeling in…

October 24, 2016 at 11:42 am by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis Registry clinical trials now recruiting

One of the aims of the Australian Idiopathic Pulmonary Fibrosis (IPF) Registry is to maximise recruitment into IPF clinical trials, thereby supporting the development of novel therapies. Currently, a number of IPF clinical trials are planned that will offer anti-fibrotic medication in both their placebo and active arm. In addition, there are a number of…

October 24, 2016 at 11:47 am by Laura Guthrie

Farewell to Lung Foundation friends

In this issue we recognise four people who have significantly contributed to the work of Lung Foundation Australia over the years. There is insufficient space in this newsletter to truly do justice to the extent of their involvement with us, however, it is important we acknowledge them and their dedication and commitment to the Lung…

October 24, 2016 at 11:51 am by Laura Guthrie

The Bronchiectasis Toolbox: an invaluable resource for patients with bronchiectasis

The Bronchiectasis Toolbox is a multidisciplinary resource for health professionals on the management of people with bronchiectasis. It has been developed by a team of clinicians from the Alfred Hospital in Melbourne, who all have extensive experience in this area. The easily navigated website includes sections on diagnosis, assessment, medical and physiotherapy management, medicines, radiology,…

October 24, 2016 at 11:56 am by Laura Guthrie

Healthy eating in lung disease

Professor Lisa Wood, PhD, RNutr, Priority Research Centre for Healthy Lungs, Hunter Medical Research Institute and University of Newcastle The New Year is the time when we often stop and think about the year ahead and what we could be doing differently, or better. We often think about eating more healthily – what exactly does…

February 20, 2017 at 10:48 am by Laura Guthrie

From the CEO’s desk

On behalf of the Board and staff of Lung Foundation Australia, I wish you all a happy new year. I would also like to give a vote of thanks to the Lung Foundation Australia community for your generosity last year. You will read in these pages that our fundraising efforts at the end of 2016,…

February 20, 2017 at 10:52 am by Laura Guthrie

Love Your Lungs’ club update

Following the launch of our new ‘Love Your Lungs’ club in September last year, we have had an overwhelmingly positive response with about 550 club members now signed up, an increase of approximately 50 per cent. The club is a great way to show people with lung disease how much you care and if you…

February 20, 2017 at 10:54 am by Laura Guthrie

My Cancer Pal

My Cancer Pal (MCP) is a mobile app for Australians living with cancer, providing 24/7 access to key management and support tools, combined with reliable peer-reviewed information. Through years working with people living with cancer, Lung Cancer Nurse Consultant and MCP founder Sara McLaughlin-Barrett recognised how important it was for patients to be able to…

February 20, 2017 at 10:56 am by Laura Guthrie

Severe COPD treatment options now available at Alfred Health

Mr Julian Gooi, Cardiothoracic Surgery, Alfred Health, Melbourne  Alfred Health in Melbourne has a new specialised clinic offering advanced medical and surgical options for people with end-stage emphysema. The options include lung volume reduction surgery (LVRS) and non-surgical lung reduction using endobronchial valves. The aim of these treatments is to decrease hyper-inflation of the lungs.…

February 20, 2017 at 12:20 pm by Laura Guthrie

Perseverance at Lungs in Action leads to the gift of life

Mutu Mellish is a 55 year old Gold Coast resident living with end-stage COPD. Early in 2016, doctors advised Mutu that a lung transplant was his best option however, at that time, he was not physically well enough to be put on the transplant list. To improve his strength, Mutu completed pulmonary rehabilitation which helped…

February 20, 2017 at 12:26 pm by Laura Guthrie

Staff news

As Lung Foundation Australia continues to grow, there has been a number of staff changes and new roles created as we move into 2017! In January we welcomed four members to the team: Danielle Aami – Senior Manager – Marketing and Communications Jane Kerr – General Manager – Lung Cancer National Program Desiree Vedia –…

February 20, 2017 at 12:42 pm by Laura Guthrie

Melbourne Better Living with Your Lung Disease Patient Seminar

Lung Foundation Australia’s Information and Support Centre has been busy scheduling the upcoming seminars for 2017 and we look forward to bringing these to locations near you. Last year, we were fortunate to receive funding from community grants which assisted in covering the costs of some of our existing events, as well as bringing seminars…

February 20, 2017 at 12:48 pm by Laura Guthrie

World COPD Day 2016

World COPD Day on Wednesday 16 November was a great success with a total of 250 events registered across the country. Social media posts with fun photos flooded in highlighting the many different activities groups held to raise awareness of the symptoms of COPD a nd website hits were triple last year’s numbers. Thanks to everyone who took…

February 20, 2017 at 12:50 pm by Laura Guthrie

New and updated resources

Better Living with COPD: A Patient Guide (Third Edition) now in stock! The latest version of the popular Better Living with COPD: A Patient Guide has arrived and is available for purchase on our online shop for $18 (plus postage and handling). This highly valued resource has been developed to enable people with COPD to better…

February 22, 2017 at 12:35 pm by Laura Guthrie

COPD Patient Advocate Group (CPAG) update

Ian Venamore, Chair, CPAG Like many of us, I spent some time over the last few weeks reflecting on the year just past and wondering what 2017 will bring; remembering those no longer with us and their valued contribution to us as friends or family, and to the importance of lung health. I hope the…

February 22, 2017 at 12:41 pm by Laura Guthrie

Our Lung Cancer Nurse is here to support you

If you are newly diagnosed or living with lung cancer and have questions or concerns regarding your diagnosis, treatments or post-treatment support, Lung Foundation Australia can help! We offer a nurse-led telephone support service for both patients and carers which is available from Monday to Thursday from 8.30am to 3.00pm. Please phone freecall 1800 654…

February 22, 2017 at 12:49 pm by Laura Guthrie

A focus on fundraising

We extend a huge thanks to our supporters who gave so generously during our Christmas Appeal, enabling us to raise over $15,000 which will go towards supporting the work of our wonderful Information and Support Centre team. The appeal will remain open until the end of February. Please consider a donation to the appeal which can…

February 22, 2017 at 2:28 pm by Laura Guthrie

The Australian Bronchiectasis Registry: Welcome to Alice Springs

Bronchiectasis can develop in people of any age and cultural background but even so it is increasingly recognised that Indigenous Australians living in remote Australia are particularly at risk. Studies have shown an unacceptably high burden of ill-health and premature death from bronchiectasis especially in Indigenous children and younger persons. Consequently, the Australian Bronchiectasis Registry…

February 22, 2017 at 2:30 pm by Laura Guthrie

Lung Cancer Network Australia update

Kerrie Callaghan, Lung Cancer Network Australia Project Manager, Lung Foundation Australia Shine a Light on lung cancer events raised more than $50,000 in November We are thrilled about the success of our 2016 Shine a Light on lung cancer awareness and fundraising campaign. Events included a Brisbane Gala Ball, four community walks,10 morning teas/lunches, 10…

February 22, 2017 at 2:34 pm by Laura Guthrie

The role of palliative care for people living with lung disease

Claire Mulvihill, Lung Cancer Nurse, Lung Foundation Australia When speaking to patients, one of the common topics of conversation is support, however, I have noticed reluctance in many people to access palliative care. I have also noted some people don’t accept or access palliative care services due to a sense of fear or that they…

February 22, 2017 at 2:38 pm by Laura Guthrie

Australian Idiopathic Pulmonary Fibrosis (IPF) Registry – trials recruiting now

As outlined previously, one of the Australian IPF Registry’s aims is to maximise recruitment into IPF clinical trials, thereby supporting the development of novel therapies. A number of IPF clinical trials are planned that will offer anti-fibrotic medication in both their placebo and active arm. A summary of IPF clinical trials currently recruiting in Australia…

February 22, 2017 at 2:43 pm by Laura Guthrie

Are you looking to buy or sell a second hand portable oxygen concentrator?

Lung Foundation Australia offers assistance with the sale of second-hand portable oxygen concentrators, putting potential buyers in touch with sellers of second-hand equipment. If you are interested in buying or selling a machine, phone 1800 654 301 or email enquiries@lungfoundation.com.au to obtain the ‘Information for buyers and sellers of portable oxygen equipment’ form.

February 27, 2017 at 12:14 pm by Laura Guthrie

Preventing exacerbations and keeping yourself safe this winter

As you may be aware, an exacerbation or flare up of your Chronic Obstructive Pulmonary Disease (COPD) is as detrimental to the lungs as a coronary is for the heart. Each time a patient with COPD has a chest infection or an exacerbation, their lungs are robbed of vital reserve. Too many exacerbations means the…

May 8, 2017 at 10:55 am by Amelia Parsons

Don’t get more than you bargained for this winter – protect your lungs from influenza and pneumococcal pneumonia infection

Depending on where you live in Australia, winter can be a great time of year with the days of searing heat and humidity of summer having passed. However, winter is also a time to be wary, as some of the most common and potentially life-threatening illnesses can sneak up on us during the colder months.…

May 8, 2017 at 11:11 am by Amelia Parsons

From the CEO

Dear readers, I have recently returned from the annual Thoracic Society of Australia and New Zealand (TSANZ) conference which is an excellent opportunity for Lung Foundation Australia to reconnect with the clinical and research community. Research is fundamental to the work of Lung Foundation Australia. It underpins everything we do, ensuring we provide best-practice services,…

May 8, 2017 at 11:24 am by Amelia Parsons

Diary Dates 2017

5 May World Pulmonary Hypertension Day 16 May Lung Cancer Connect Webinar: Looking at the needs of patients newly diagnosed with lung cancer 29 May Geraldton (WA) Patient Seminar – New in 2017 30 May Perth Patient Seminar 12 July Gold Coast Patient Seminar 14 July Corporate Cycle Challenge, Brisbane 18 – 19 August Australian…

May 8, 2017 at 11:31 am by Amelia Parsons

Join our Love Your Lungs Club and receive a hard copy of LungNet News

We thank those of you who have joined our Love Your Lungs Club or renewed your membership since the launch last year. As you may be aware we’ve recently enhanced our membership program at a reduced annual fee of $30 (including GST). By joining the Love Your Lungs Club you are showing your support for…

May 8, 2017 at 11:41 am by Amelia Parsons

Two new lung cancer trials open in Australia

The Australasian Lung Cancer Trials Group (ALTG), an initiative of Lung Foundation Australia, is a multi-disciplinary organisation dedicated to reducing the incidence, morbidity and mortality of lung and other thoracic cancers and improving the quality of life of patients, carers and families through the coordination and facilitation of high quality clinical research. The ALTG has…

May 8, 2017 at 11:47 am by Amelia Parsons

New patient support group: Goulburn Gaspers

The Goulburn Gaspers is a new patient support group for people living with a respiratory condition, their families, friends and carers in Goulburn, New South Wales. Patient support groups are a great way of sharing information and experiences with others who have a similar condition and enable members to take part in social activities, access…

May 8, 2017 at 11:54 am by Amelia Parsons

Reflections on six years of living with advanced lung cancer

Jo Silva, Spouse of Jay Silva, living with stage 4 lung cancer My husband Jay was diagnosed with stage 4 lung cancer in 2011 at age 39, and this year we are excited to be celebrating his six year survivorship anniversary – a survival that was not remotely contemplated in 2011. Since Jay’s diagnosis we…

May 8, 2017 at 11:59 am by Amelia Parsons

Our clinical experts

Lung Foundation Australia has a number of clinical staff whose experience allows us to deliver evidence-based training, tools and resources to support our patients, their carers and health professionals. Kirsten Phillips – General Manager COPD Kirsten Phillips is a qualified occupational therapist and has worked across a variety of health services and organisations both in…

May 8, 2017 at 12:20 pm by Amelia Parsons

New collaboration supporting early career health research students

Lung Foundation Australia is delighted to announce our new partnership with the Better Breathing Foundation, a not-for-profit organisation which supports early career allied health research students to conduct high quality research on chronic lung diseases. Through this new and exciting collaboration, we will be offering PhD Scholarships to support early career allied health research students…

May 8, 2017 at 12:21 pm by Amelia Parsons

Patient seminar providing the latest in rare lung diseases

As part of our goal to provide the latest, evidence-based information on lung disease to patients, Lung Foundation Australia is hosting a Patient Education Seminar as part of the Australian Rare Lung Disease Short Course on Saturday 19 August in Sydney. The seminar is for anyone living with, or caring for someone with a rare…

May 8, 2017 at 12:22 pm by Amelia Parsons

Lungs in Action substantially improved my quality of life

 Emma Gainer, Program Manager – Lungs in Action,  Lung Foundation Australia In this edition, we talk to Brisbane resident Meredith who was diagnosed with Chronic Obstructive Pulmonary Disease (COPD) in her 50’s and the path she has taken to improve and manage her health, as well as her new role volunteering at Lung Foundation Australia.…

May 8, 2017 at 12:30 pm by Amelia Parsons

An update to our application for pulmonary rehabilitation on the Medicare Benefits Schedule (MBS)

Pulmonary rehabilitation is an exercise and education program provided by specially trained health professionals such as physiotherapists and accredited exercise physiologists that teaches people with lung disease the skills they need to manage their breathlessness and to stay well and out of hospital. As you may be aware, Lung Foundation Australia applied to the Medical…

May 8, 2017 at 12:39 pm by Amelia Parsons

Australia and New Zealand pulmonary rehabilitation guidelines launched

Lung Foundation Australia, in collaboration with the Thoracic Society of Australia and New Zealand (TSANZ) has developed and launched the first-ever pulmonary rehabilitation guidelines for Australia and New Zealand. The guidelines provide health professionals with evidence-based recommendations for the practice of pulmonary rehabilitation specific to Australian and New Zealand healthcare contexts. The guidelines will assist…

May 8, 2017 at 12:44 pm by Amelia Parsons

New lung cancer webinar series launched

Lung Foundation Australia is excited to be launching a new online live webinar series, Lung Cancer Connect, which will provide information, advice and expertise that will help improve outcomes and self-management for people living with lung cancer. The first webinar, Looking at the Needs of Patients Newly Diagnosed with Lung Cancer, is scheduled for Tuesday…

May 8, 2017 at 12:58 pm by Amelia Parsons

Patient seminars providing the latest tips for managing your lung disease

Patient seminars provide patients and carers with the latest evidence-based information and practical tips to help them to live better, stay out of hospital and improve their overall quality of life as well as to meet other people who live with a lung condition. In March, Lung Foundation Australia held the first patient seminar for…

May 8, 2017 at 2:47 pm by Amelia Parsons

Our new online patient forum Breathing Space

Lung Foundation Australia is currently rolling out Breathing Space, our new online patient support system, an online space where people living with and affected by lung disease can connect to each other. This online support group is open to anyone including patients, carers, friends and family members and others affected by lung disease to use.…

May 8, 2017 at 2:49 pm by Amelia Parsons

Staff news

Lung Foundation Australia extends a warm welcome to our newest staff member, Karen Howarth, who started in the Information and Support Centre in February. Karen has a strong background in the not-for-profit sector having previously worked for Parkinsons Queensland, answering enquiries from patients and carers and coordinating the Patient Support Group network. Karen is in…

May 8, 2017 at 2:51 pm by Amelia Parsons

New and updated resources

Better Living with Exercise – Your Personal Guide Working with a team of experienced health professionals and patients, Lung Foundation Australia has developed the first stand-alone resource dedicated to exercise. Better Living with Exercise – Your Personal Guide has been developed to facilitate patients and their exercise physiologist or physiotherapist to develop the most suitable…

May 8, 2017 at 2:53 pm by Amelia Parsons

COPD Patient Advocate Group update: We want to hear from you

Ian Venamore, COPD Patient Advisory Group (CPAG) Chair Lung Foundation Australia and the COPD Patient Advocate Group (CPAG) are always eager to hear feedback, questions and opinions from patients and carers in our COPD community about living with this condition. CPAG members are either patients or carers with an understanding of COPD’s daily challenges and…

May 8, 2017 at 2:57 pm by Amelia Parsons

Effective treatment for Idiopathic Pulmonary Fibrosis (IPF) patients now available

Anti-fibrotic medications are drugs that inhibit or reduce fibrosis in the lung. Two such drugs, pirfenidone and nintedanib, which have been proved to slow the disease progression in IPF patients, have now been recommended for listing on the Pharmaceutical Benefits Scheme (PBS). One of these medications, nintedanib, has now been listed on the PBS and…

May 8, 2017 at 3:17 pm by Amelia Parsons

A focus on fundraising

Lung Foundation Australia’s fundraising events promote community involvement, increase awareness of the importance of lung health and raise vital funds to support the work we do and to support research. Even if you are unable to participate, we encourage you to let your family and friends know about them. Register in our Corporate Cycle Challenge…

May 8, 2017 at 3:22 pm by Amelia Parsons

Farewell to Lung Foundation friends

Beryl Braddock In January, Logan Breathe Ezy Patient Support Group bade a sad and fond farewell to founding member Beryl Braddock who passed away on 27 January. Beryl was a much loved and respected member of our group and she provided invaluable support to patients and carers affected by lung disease over the years. She…

May 8, 2017 at 3:32 pm by Amelia Parsons

The changing face of lung cancer treatments

Claire Mulvihill, Lung Cancer Support Nurse, Lung Foundation Australia In December, I was fortunate to attend the World Conference on Lung Cancer (WCLC) in Vienna which reinforced that we are seeing an incredible change and hope in the realm of lung cancer both nationally and internationally. Lung cancer treatments are also becoming increasingly accessible to…

May 8, 2017 at 3:33 pm by Amelia Parsons

Our new online patient forum Breathing Space

Lung Foundation Australia is currently rolling out Breathing Space, our new online patient support system, an online space where people living with and affected by lung disease can connect to each other. This online support group is open to anyone including patients, carers, friends and family members and others affected by lung disease to use. You can log onto Breathing…

May 9, 2017 at 1:57 pm by Laura Guthrie

Gardening with a Lung Condition

With spring just around the corner, you may be thinking of getting out into the garden which is a great way to keep active and get out in the fresh air. Many people with a lung condition find that gardening is one of the activities that can be difficult when they are short of breath.…

July 14, 2017 at 11:31 am by Laura Guthrie

From the CEO

Dear readers, Lung Foundation Australia hosts a number of major fundraising events each year and by the time you read this, our second Corporate Cycle Challenge will have taken place. Our goal is to raise $100,000 to go towards research into lung disease. We are grateful to our sponsors Novartis and Philips Respironics for helping…

July 14, 2017 at 11:42 am by Laura Guthrie

Update from the American Society of Clinical Oncology (ASCO) Annual Meeting, 2-6 June 2017

In June, Lung Foundation Australia staff members attended the American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago. The meeting was packed with new data, clinical trial results, meet the professor/expert and educational sessions covering lung cancer and mesothelioma. Presentations focused on many studies utilising new targeted therapies for Non Small Cell Lung Cancer…

July 17, 2017 at 8:55 am by Laura Guthrie

Living with a lung condition

A chat with Janelle Griffiths, Bunbury, Western Australia At the Lung Foundation, we have the privilege of speaking to and meeting people around Australia who have interesting stories to tell about their lives and the ways they manage their condition and continue to enjoy their hobbies. At the Perth Patient Seminar, the Information and Support…

July 17, 2017 at 8:58 am by Laura Guthrie

Pulmonary rehabilitation is beneficial for people with bronchiectasis

Pulmonary rehabilitation is routinely recommended for people with Chronic Obstructive Pulmonary Disease (COPD), but recent studies have highlighted that people diagnosed with bronchiectasis can also achieve benefit. The Clinical Practice Guideline from the Thoracic Society of Australia and New Zealand encourages regular exercise1 and the recent Lung Foundation Australia and Thoracic Society of Australia and…

July 17, 2017 at 9:01 am by Laura Guthrie

Lung Foundation Australia leads the way in quit smoking campaign

QUIT4october is a month-long quit smoking initiative dedicated to helping people to quit smoking with the support of their GP or pharmacist. Research shows that if a smoker can quit for a month, they are more than five times more likely to become a permanent ex-smoker.1 If you are a smoker who wants to quit,…

July 17, 2017 at 9:23 am by Laura Guthrie

Lung Health Awareness Month

November is Lung Health Awareness Month and this year, we will be focusing on reducing the stigma associated with lung disease to help increase awareness, funding and support. We will undertake a range of activities across a number of disease areas and there will be many ways you can get involved, including: Shine a Light…

July 17, 2017 at 9:25 am by Laura Guthrie

Turning the spotlight on rare lung disease

In Australia, people diagnosed with a rare lung condition are often left feeling isolated, helpless and riddled with uncertainty and despair for the future due to the lack of information, support, treatment and research available. In a bid to turn the spotlight on rare lung disease, Lung Foundation Australia held a Parliamentary Friends for Lung…

July 17, 2017 at 9:30 am by Laura Guthrie

Membership corner

In each edition of LungNet News, we will feature some of our Love Your Lungs club members and highlight some key member benefits or resources they find useful and interesting. Tania, Augusta, Western Australia Tania has chronic bronchitis, which falls under the Chronic Obstructive Pulmonary Disease (COPD) umbrella and was diagnosed in 2015. She first…

July 17, 2017 at 9:37 am by Laura Guthrie

Australian Rare Lung Disease Short Course Patient Education Seminar – Book now

As part of the third Australian Rare Lung Disease Short Course, Lung Foundation Australia is hosting a Patient Education Seminar on Saturday 19 August in Sydney. As part of the third Australian Rare Lung Disease Short Course, Lung Foundation Australia is hosting a Patient Education Seminar on Saturday 19 August in Sydney. What is a rare…

July 17, 2017 at 9:40 am by Laura Guthrie

Have the CHAT to stay well and out of hospital

Lung Foundation Australia is encouraging people with Chronic Obstructive Pulmonary Disease (COPD) to Have the CHAT with their doctor so they can stay well and out of hospital during the cooler months. COPD is the second leading cause of preventable hospitalisations in Australia1 and every exacerbation (flare-up of symptoms) does long term damage2. That’s why…

July 17, 2017 at 9:44 am by Laura Guthrie

Research in lung disease – What are we doing?

Research offers hope and undisputed benefits for improving outcomes in lung diseases. In 2016, Lung Foundation Australia funded 29 research projects that studied both respiratory and thoracic oncology conditions and reached a significant funding milestone of $2.25 million, an increase of 47 percent since 2015. Lung Foundation Australia has identified four priority areas to help…

July 17, 2017 at 9:46 am by Laura Guthrie

A Lungs in Action milestone in the apple isle

Lungs in Action is a safe, enjoyable and low cost exercise maintenance program for people who have completed a pulmonary rehabilitation program. There are currently over 80 locations running nationally with about 1,400 people participating. One of the longest running locations is the University of Tasmania’s (UTAS) exercise physiology clinics in Launceston with 2017 marking…

July 17, 2017 at 9:57 am by Laura Guthrie

Online forum highlights practical day-to-day advice on living with a lung disease

Breathing Space, Lung Foundation Australia’s new online support forum, launched earlier this year is a great place to start if you are looking for peer support from others who live with lung disease. The forum is also open to carers, friends and families of those who live with lung disease. Some of the current topics…

July 17, 2017 at 9:58 am by Laura Guthrie

Patient seminars help people to live well with a lung disease

In our quest to continue to provide the latest tips on living well with a lung disease at our Patient Seminars, Lung Foundation Australia visited both Canberra and Perth in May. It was great to see a high number of attendees at each seminar, with Canberra reaching record registration of 100 people and Perth at…

July 17, 2017 at 9:59 am by Laura Guthrie

First Lung Cancer Connect webinar focuses on the needs of patients newly diagnosed with lung cancer

Lung Foundation Australia’s free webinar series, Lung Cancer Connect, provides patients, carers, family and friends, as well as interested health professionals, with information, advice and support about living with lung cancer. Participants are able to watch the webinar live and ask questions from the comfort of their home. Our first webinar, Looking at the Needs…

July 17, 2017 at 10:02 am by Laura Guthrie

New and updated resources

Better Living with Pulmonary Arterial Hypertension Better Living with Pulmonary Arterial Hypertension (PAH) A Patient Guide helps patients and carers understand more about PAH, the symptoms, treatment options and practical steps that can be taken to live better with the condition. For more information or to download a copy visit http://lungfoundation.com.au/patient-support/rarelung/pulmonary-arterial-hypertension/. COPD Checklist My COPD Checklist…

July 17, 2017 at 10:03 am by Laura Guthrie

A focus on fundraising

Rainbow Committee’s movie night finds its pot of gold The Rainbow Committee held a fundraising film night in early May and raised more than $12,000 to support Lung Foundation Australia’s Young Lungs program. This group of friends based in Melbourne has been fundraising for various charities for the last 30 years. Committee member, Mrs Ann…

July 17, 2017 at 10:07 am by Laura Guthrie

Patient Survey

In May 2017, we distributed a survey to gain a deeper understanding of the key issues facing our patient and carer communities, and to see where Lung Foundation Australia meets – or can better meet – your needs. We take this opportunity to thank the 1,700+ people who took the time to respond. The information…

July 17, 2017 at 10:13 am by Laura Guthrie

Australian IPF Registry research looks at quality of life in those with IPF

Little is known about Idiopathic Pulmonary Fibrosis (IPF) and the impacts of this debilitating and complex lung disease. To improve our understanding, Australian IPF Registry participants generously contribute information about their health every six months so that it can be used to undertake a wide range of research projects. Recently an important study using this…

July 17, 2017 at 10:18 am by Laura Guthrie

Farewell to Lung Foundation friends

Megan Rushton On 22 April, COPD Patient Advocate Group (CPAG) member and past chair, Megan Rushton passed away. For the past seven years, Megan had been a passionate supporter of the Lung Foundation and her input and counsel was highly valued and her opinions keenly sought. Megan organised awareness days, spoke in the media on…

July 17, 2017 at 10:20 am by Laura Guthrie