In this video Cardiologist A/Prof Rachael Cordina discuss the importance of being involved in the making decisions about your Pulmonary Arterial Hypertension (PAH) treatment and how to advocate for yourself to ensure your preferences and needs are heard. The PAH Patient Charter outlines the standards of holistic care that you should expect to receive. This includes your healthcare team listening to your preferences and involving you in decision-making, and being informed of the full range of evidence-based treatment options available to you.
Lung Foundation Australia offers resources, information, support services and programs for people living with PAH and Pulmonary Hypertension. You can download a free resource and information pack, which includes the PAH Patient Charter, via the website here.