Idiopathic Pulmonary Fibrosis

We know that people with a rare disease, such as Idiopathic Pulmonary Fibrosis (IPF) face very similar problems including:

  • A delay in diagnosis and treatment due to limited awareness of their condition
  • Difficulty accessing information, the best service and treatment, either because of locality or because one does not exist
  • Difficulty navigating the health system and accessing support, whether this is in the form of equipment, financial or peer support.

Lung Foundation Australia is working to fill these gaps through a range of resources and initiatives.

Research

We are committed to driving dedicated research that will help improve the health outcomes and quality of life for those affected by IPF. Our research program includes a world renowned IPF registry, clinical trials group  and a suite of IPF research awards and grants available to researchers and health professionals.

For your patients

Lung Foundation Australia has a range of evidence-based services and resources that will enable your patients to better understand and manage their condition. Our services and resources are designed to support clinical treatment plans and help drive optimal health outcomes.  For more information or hard copies of resources, please contact us via enquiries@lungfoundation.com.au or call 1800 654 301.

Respiratory Nurse

Lung Foundation Australia’s Respiratory Nurse provides evidence-based information and guidance, emotional support and referral advice to local services where appropriate. This free and confidential service will be available from late 2018 via free call 1800 654 301 and email us.

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Peer Connect

It can make all the difference to connect with someone who understands what you are going through. Our Pulmonary Fibrosis (PF) peer to peer service matches your patient with someone in a similar situation, supporting them to connect to each other via phone or email.

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Information and Support Centre
Our Information and Support Centre team provides guidance, information and support, and connects people to relevant and valuable Lung Foundation Australia and community support services. This free and confidential service is available Monday to Friday 8am – 4.30pm (AEST) (excl. public holidays). Please note that this service does not offer medical or treatment advice.
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LungNet Newsletter

Encourage your patients to stay up to date with services, events and information that will help them live well with your lung condition by signing up to our quarterly LungNet email newsletter.