We know that people with a rare disease, such as Idiopathic Pulmonary Fibrosis (IPF) face very similar problems including:
- A delay in diagnosis and treatment due to limited awareness of their condition
- Difficulty accessing information, the best service and treatment, either because of locality or because one does not exist
- Difficulty navigating the health system and accessing support, whether this is in the form of equipment, financial or peer support.
Lung Foundation Australia is working to fill these gaps through a range of resources and initiatives.
We are committed to driving dedicated research that will help improve the health outcomes and quality of life for those affected by IPF. Our research program includes a world renowned IPF registry, clinical trials group and a suite of IPF research awards and grants available to researchers and health professionals.